词条 | List of patient-reported quality of life surveys |
释义 |
This page lists patient-reported quality of life surveys used in the field of medicine, pharmaceuticals, and other scientific trials. These surveys are patient-reported outcome measures, may be questionnaires or surveys, and may be used to evaluate patient satisfaction, symptoms, disease state, or psychological well-being. List
References1. ^{{cite web|title=ACQLI|url=http://www.galen-research.com/content/measures/ACQLI%20UK%2030%20Male%20Patient%20-%20First%20page%20sample.pdf|website=Galen-Research.com|publisher=Galen Research|accessdate=11 November 2013}} {{DEFAULTSORT:Patient-reported quality of life surveys}}2. ^{{ClinicalTrialsGov|NCT00428090|Rosiglitazone (Extended Release Tablets) As Monotherapy In Subjects With Mild To Moderate Alzheimer's Disease}} 3. ^{{ClinicalTrialsGov|NCT00348309|Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy For Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-2)}} 4. ^{{ClinicalTrialsGov|NCT00348140|Rosiglitazone (Extended Release Tablets) As Adjunctive Therapy In Subjects With Mild To Moderate Alzheimer's Disease (REFLECT-3)}} 5. ^{{cite journal |doi=10.2165/11599140-000000000-00000 |pmid=22350526 |title=Does Pharmacological Treatment of Neuropsychiatric Symptoms in Alzheimerʼs Disease Relieve Caregiver Burden? |year=2012 |last1=Levy |first1=Karen |last2=Lanctôt |first2=Krista L. |last3=Farber |first3=Shale B. |last4=Li |first4=Abby |last5=Herrmann |first5=Nathan |journal=Drugs & Aging |volume=29 |issue=3 |pages=167–179}} 6. ^{{cite journal|last=Spertus|first=J.A.|author2=Winder, J.A. |author3=Dewhurst, T.A. |author4=Deyo, R.A. |author5=Prodzinski, J. |author6=McDonell, M. |author7= Fihn, S.D. |title=Development and evaluation of the Seattle Angina Questionnaire: a new functional status measure for coronary artery disease|journal=Journal of the American College of Cardiology|year=1995|volume=25|issue=2|pages=333–341|doi=10.1016/0735-1097(94)00397-9|pmid=7829785|url=http://www.sciencedirect.com/science/article/pii/0735109794003979|accessdate=27 November 2013}} 7. ^{{cite journal|last=Jitta|first=D.J.|author2=DeJongste, M.J. |author3=Kliphuis, C.M. |author4= Staal, M.J. |title=Multimorbidity, the predominant predictor of quality-of-life, following successful spinal cord stimulation for angina pectoris|journal=Neuromodulation|year=2011|volume=14|issue=1|pages=13–18|doi=10.1111/j.1525-1403.2010.00321.x|pmid=21992156}} 8. ^{{cite journal|last=Villano|first=A|author2=Di Franco, A.; Nerla, R.; Sestito, A.; Tarzia, P.; Lamendola, P.; Di Monaco, A.; Sarullo, F.M.; Lanza, G.A.; Crea, F.|title=Effects of ivabradine and ranolazine in patients with microvascular angina pectoris|journal=The American Journal of Cardiology|year=2013|volume=112|issue=1|pages=8–13|doi=10.1016/j.amjcard.2013.02.045|pmid=23558043}} 9. ^{{cite journal|last=Andrelle|first=P.|author2=Ekre, O. |author3=Grip, L. |author4=Wahrborg, P. |author5=Albertsson, P. |author6=Eliasson, T. |author7=Jeppsson, A. |author8= Mannheimer, C. |title=Fatality, morbidity and quality of life in patients with refractory angina pectoris|journal=International Journal of Cardiology|year=2011|volume=147|issue=3|pages=377–382|doi=10.1016/j.ijcard.2009.09.538|pmid=19880202}} 10. ^{{cite journal |doi=10.1136/ard.62.1.20 |title=Development of the ASQoL: A quality of life instrument specific to ankylosing spondylitis |year=2003 |last1=Doward |first1=L C |journal=Annals of the Rheumatic Diseases |volume=62 |pages=20–6 |pmid=12480664 |last2=Spoorenberg |first2=A |last3=Cook |first3=SA |last4=Whalley |first4=D |last5=Helliwell |first5=PS |last6=Kay |first6=LJ |last7=McKenna |first7=SP |last8=Tennant |first8=A |last9=Van Der Heijde |first9=D |last10=Chamberlain |first10=MA |issue=1 |pmc=1754293}} 11. ^{{cite journal |doi=10.1186/ar2790 |pmid=19686597 |pmc=2745808 |title=Physical function, disease activity, and health-related quality-of-life outcomes after 3 years of adalimumab treatment in patients with ankylosing spondylitis |year=2009 |last1=Van Der Heijde |first1=Désirée M |last2=Revicki |first2=Dennis A |last3=Gooch |first3=Katherine L |last4=Wong |first4=Robert L |last5=Kupper |first5=Hartmut |last6=Harnam |first6=Neesha |last7=Thompson |first7=Chris |last8=Sieper |first8=Joachim |journal=Arthritis Research & Therapy |volume=11 |issue=4 |pages=R124}} 12. ^{{cite journal |doi=10.1002/art.22887 |pmid=17665483 |title=Health-related quality of life outcomes in patients with active ankylosing spondylitis treated with adalimumab: Results from a randomized controlled study |year=2007 |last1=Davis |first1=John C. |last2=Revicki |first2=Dennis |last3=Van Der Heijde |first3=Désirée M. F. |last4=Rentz |first4=Anne M. |last5=Wong |first5=Robert L. |last6=Kupper |first6=Hartmut |last7=Luo |first7=Michelle P. |journal=Arthritis & Rheumatism |volume=57 |issue=6 |pages=1050–1057}} 13. ^{{cite journal |doi=10.1002/1529-0131(200109)44:9<2112::AID-ART363>3.0.CO;2-H |title=Efficacy of etanercept in the treatment of the entheseal pathology in resistant spondylarthropathy: A clinical and magnetic resonance imaging study |year=2001 |last1=Marzo-Ortega |first1=Helena |last2=McGonagle |first2=Dennis |last3=O'Connor |first3=Philip |last4=Emery |first4=Paul |journal=Arthritis & Rheumatism |volume=44 |issue=9 |pages=2112–2117}} 14. ^{{cite journal |doi=10.1136/ard.62.10.1020 |title=Bone mineral density improvement in spondyloarthropathy after treatment with etanercept |year=2003 |last1=Marzo-Ortega |first1=H |journal=Annals of the Rheumatic Diseases |volume=62 |issue=10 |pages=1020–1 |pmid=12972490 |last2=McGonagle |first2=D |last3=Haugeberg |first3=G |last4=Green |first4=MJ |last5=Stewart |first5=SP |last6=Emery |first6=P |pmc=1754338}} 15. ^{{cite journal|last=Juniper|first=E.F.|author2=Guyatt, G.H. |author3=Epstein, R.S. |author4=Ferrie, P.J. |author5=Jaeschke, R. |author6= Hiller, T.K. |title=Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials|journal=Thorax|year=1992|volume=47|pages=76–83|doi=10.1136/thx.47.2.76|pmid=1549827|url=http://thorax.bmj.com/content/47/2/76|accessdate=25 November 2013|issue=2|pmc=463574}} 16. ^{{cite journal|last=Kim|first=M.A.|author2=Ye, Y.M.; Park, J.W.; Lee, J.H.; Lee, S.K.; Kim, C.W.; Jung, K.S.; Kim, J.H.; Yoo, H.S.; Kim, S.H; Shin, Y.S; Nahm, D.H.; Park, H.S.|title=A Computerized Asthma-Specific Quality of Life: A Novel Tool for Reflecting Asthma Control and Predicting Exacerbation|journal=International Archives of Allergy and Immunology|year=2013|volume=163|issue=1|pages=36–42|doi=10.1159/000356336|pmid=24247849|url=http://www.karger.com/Article/FullText/356336|accessdate=25 November 2013}} 17. ^{{cite journal|last=Cano Fuentes|first=G.|author2=Dastis Bendala, C; Morales Barroso, I; Manzanares Torne, M.L.; Fernandez Gregorio, A.; Martin Romana, L.|title=A randomised clinical trial to evaluate the effectiveness of an educational intervention developed for adult asthmatics in a primary care centre|journal=Atencion Primaria|volume=46|issue=3|pages=117–39|year=2013|doi=10.1016/j.aprim.2013.04.005|pmid=24176681|last3=Morales Barroso|first3=I|last4=Manzanares Torné|first4=M. L.|last5=Fernández Gregorio|first5=A|last6=Martín Romana|first6=L}} 18. ^{{cite journal|last=Freitas|first=D.A.|author2=Holloway, E.A. |author3=Bruno, S.S. |author4=Chaves, G.S. |author5=Fregonezi, G.A. |author6= Mendonca, K.M. |title=Breathing exercises for adults with asthma|journal=The Cochrane Database of Systematic Reviews|year=2013|issue=10|doi=10.1002/14651858.CD001277.pub3 |pmid=24085551 |volume=10 |pages=CD001277}} 19. ^{{cite journal |doi=10.1016/j.rmed.2009.11.023 |title=Development and validation of the Asthma Life Impact Scale (ALIS) |year=2010 |last1=Meads |first1=David M. |last2=McKenna |first2=Stephen P. |last3=Doward |first3=Lynda C. |last4=Pokrzywinski |first4=Robin |last5=Revicki |first5=Dennis |last6=Hunter |first6=Cameron |last7=Glendenning |first7=G. Alastair |journal=Respiratory Medicine |volume=104 |issue=5 |pages=633–43 |pmid=20053543}} 20. ^{{cite web|last=Crawford|first=SR|title=Further Developments of the Asthma Life Impact Scale (ALIS)|url=http://www.galen-research.com/content/publications/Galen-ALIS-poster.pdf|website=Galen-Research.com|publisher=Galen Research|accessdate=14 October 2013}} 21. ^{{cite journal |doi=10.1016/S1098-3015(10)62872-0 |title=Psk8 Impact of Atopic Dermatitis on the Quality-Of-Life of Parents of Children with Atopic Dermatitis |year=2005 |last1=Arnold |first1=RJG |last2=Zhou |first2=Y |last3=Wong |first3=KS |last4=Sung |first4=J |journal=Value in Health |volume=8 |issue=3 |pages=332}} 22. ^{{cite journal |doi=10.1007/s11136-004-4231-z |title=International development of the Parents' Index of Quality of Life in Atopic Dermatitis (PIQoL-AD) |year=2005 |last1=McKenna |first1=Stephen P. |last2=Whalley |first2=Diane |last3=Dewar |first3=Abigail L. |last4=Erdman |first4=Ruud A. M. |last5=Kohlmann |first5=Thomas |last6=Niero |first6=Mauro |last7=Baró |first7=Eva |last8=Cook |first8=Sharon A. |last9=Crickx |first9=Beatrice |last10=Frech |first10=Feride |last11=Van Assche |first11=Daniel van |journal=Quality of Life Research |volume=14 |pages=231–41 |pmid=15789957 |issue=1}} 23. ^{{cite journal |doi=10.1111/j.1468-3083.2006.01383.x |title=Treatment of paediatric atopic dermatitis with pimecrolimus (ElidelR, SDZ ASM 981): Impact on quality of life and health-related quality of life |year=2006 |last1=McKenna |first1=SP |last2=Whalley |first2=D |last3=De Prost |first3=Y |last4=Staab |first4=D |last5=Huels |first5=J |last6=Paul |first6=CF |last7=Van Assche |first7=D |journal=Journal of the European Academy of Dermatology and Venereology |volume=20 |issue=3 |pages=248–54 |pmid=16503881}} 24. ^{{cite journal |doi=10.1542/peds.110.1.e2 |title=Efficacy and Safety of Pimecrolimus Cream in the Long-Term Management of Atopic Dermatitis in Children |year=2002 |last1=Wahn |first1=U. |last2=Bos |first2=J. D. |last3=Goodfield |first3=M. |last4=Caputo |first4=R. |last5=Papp |first5=K. |last6=Manjra |first6=A. |last7=Dobozy |first7=A. |last8=Paul |first8=C. |last9=Molloy |first9=S. |last10=Hultsch |first10=T. |last11=Graeber |first11=M. |last12=Cherill |first12=R. |last13=De Prost |first13=Y. |journal=Pediatrics |volume=110 |pages=e2 |pmid=12093983 |author14=Flare Reduction in Eczema with Elidel (Children) Multicenter Investigator Study Group |issue=1 Pt 1}} 25. ^{{cite journal |doi=10.1067/mai.2002.126500 |title=Long-term management of atopic dermatitis in infants with topical pimecrolimus, a nonsteroid anti-inflammatory drug |year=2002 |last1=Kapp |first1=Alexander |last2=Papp |first2=Kim |last3=Bingham |first3=Ann |last4=Fölster-Holst |first4=Regina |last5=Ortonne |first5=Jean-Paul |last6=Potter |first6=Paul C. |last7=Gulliver |first7=Wayne |last8=Paul |first8=Carle |last9=Molloy |first9=Stephen |last10=Barbier |first10=Nathalie |last11=Thurston |first11=Mark |last12=De Prost |first12=Yves |journal=Journal of Allergy and Clinical Immunology |volume=110 |issue=2 |pages=277–84 |pmid=12170269 |author13=Flare Reduction in Eczema with Elidel (infants) multicenter investigator study group}} 26. ^{{cite journal |doi=10.1016/j.jval.2011.11.028 |title=Health-Related Quality of Life Measurement in Children and Adolescents in Ibero-American Countries, 2000 to 2010 |year=2012 |last1=Rajmil |first1=Luis |last2=Roizen |first2=Mariana |last3=Psy |first3=Alfonso Urzúa |last4=Hidalgo-Rasmussen |first4=Carlos |last5=Fernández |first5=Gabriela |last6=Dapueto |first6=Juan José |journal=Value in Health |volume=15 |issue=2 |pages=312–22 |pmid=22433763 |author7=Working Group on HRQOL in Children in Ibero-American Countries}} 27. ^{{cite journal |doi=10.1016/S1098-3015(10)62870-7 |title=Psk6 Interpreting Scores on the Quality of Life Index for Atopic Dermatitis (Qoliad) |year=2005 |last1=Meads |first1=DM |last2=McKenna |first2=SP |last3=Doward |first3=LC |last4=Hampson |first4=N |last5=McGeown |first5=C |journal=Value in Health |volume=8 |issue=3 |pages=331–332}} 28. ^{{cite journal |doi=10.1016/S1098-3015(10)62005-0 |title=Psn12 Quality-Of-Life in Patients Suffering from Atopic Dermatitis in Germany |year=2003 |last1=Ehlken |first1=B |last2=Kugland |first2=B |last3=Schramm |first3=B |last4=Quednau |first4=K |last5=Berger |first5=K |journal=Value in Health |volume=6 |issue=6 |pages=787–788}} 29. ^{{cite journal |doi=10.1007/s00403-010-1082-z |title=A novel multidisciplinary educational programme for patients with chronic skin diseases: Ghent pilot project and first results |year=2010 |last1=Lambert |first1=J. |last2=Bostoen |first2=J. |last3=Geusens |first3=B. |last4=Bourgois |first4=J. |last5=Boone |first5=J. |last6=De Smedt |first6=D. |last7=Annemans |first7=L. |journal=Archives of Dermatological Research |volume=303 |pages=57–63 |pmid=20842368 |issue=1}} 30. ^{{cite journal |doi=10.1111/j.1365-2133.2012.11113.x |title=An educational programme for patients with psoriasis and atopic dermatitis: A prospective randomized controlled trial |year=2012 |last1=Bostoen |first1=J. |last2=Bracke |first2=S. |last3=De Keyser |first3=S. |last4=Lambert |first4=J. |journal=British Journal of Dermatology |volume=167 |issue=5 |pages=1025–31 |pmid=22709422}} 31. ^{{cite journal |doi=10.1002/14651858.CD010080 |chapter=Different strategies for using topical corticosteroids for established eczema |title=Cochrane Database of Systematic Reviews |year=2012 |last1=Moed |first1=Heleen |last2=Yang |first2=Quan |last3=Oranje |first3=Arnold P |last4=Panda |first4=Saumya |last5=Van Der Wouden |first5=Johannes C |editor1-last=Moed |editor1-first=Heleen |journal=Protocols}} 32. ^{{cite journal |doi=10.1016/S1098-3015(10)63408-0 |title=Psk6 Belgian Drug Utilisation Study of Elidel® in Routine Practice in Atopic Dermatitis |year=2006 |last1=Lecomte |first1=P |last2=Lambert |first2=J |last3=Degreef |first3=H |last4=Lesaffre |first4=E |last5=De Backer |first5=M |journal=Value in Health |volume=9 |issue=6 |pages=A268}} 33. ^{{cite journal |pmid=9460955 |year=1998 |last1=Dawson |first1=J |last2=Fitzpatrick |first2=R |last3=Murray |first3=D |last4=Carr |first4=A |title=Questionnaire on the perceptions of patients about total knee replacement |volume=80 |issue=1 |pages=63–9 |journal=The Journal of Bone and Joint Surgery. British Volume |doi=10.1302/0301-620X.80B1.7859}} 34. ^{{cite journal |doi=10.1111/j.1756-185X.2010.01580.x |title=Extension from inpatients to outpatients: Validity and reliability of the Oxford Knee Score in measuring health outcomes in patients with knee osteoarthritis |year=2011 |last1=Xie |first1=Feng |last2=Ye |first2=Hua |last3=Zhang |first3=Yu |last4=Liu |first4=Xia |last5=Lei |first5=Ting |last6=Li |first6=Shu-Chuen |journal=International Journal of Rheumatic Diseases |volume=14 |issue=2 |pages=206–10 |pmid=21518321}} 35. ^{{cite journal |pmid=8171351 |year=1994 |last1=McKenna |first1=SP |last2=Hunt |first2=SM |title=A measure of family disruption for use in chickenpox and other childhood illnesses |volume=38 |issue=5 |pages=725–31 |journal=Social Science & Medicine |doi=10.1016/0277-9536(94)90463-4}} 36. ^{{cite journal |doi=10.1186/1471-2431-9-11 |title=The impact of rotavirus gastroenteritis on the family |year=2009 |last1=Mast |first1=T Christopher |last2=Demuro-Mercon |first2=Carla |last3=Kelly |first3=Claudia M |last4=Floyd |first4=Leigh |last5=Walter |first5=Emmanuel B |journal=BMC Pediatrics |volume=9 |pages=11 |pmid=19200366 |pmc=2649068}} {{open access}} 37. ^{{cite journal |doi=10.1016/j.ijnurstu.2012.07.017 |title=Evaluation of Quality of Life instruments for use in COPD care and research: A systematic review |year=2013 |last1=Weldam |first1=Saskia W.M. |last2=Schuurmans |first2=Marieke J. |last3=Liu |first3=Rani |last4=Lammers |first4=Jan-Willem J. |journal=International Journal of Nursing Studies |volume=50 |issue=5 |pages=688–707 |pmid=22921317}} 38. ^{{cite web|title=Measures Database|url=http://www.galen-research.com/measures-database/|website=Galen-Research.com|publisher=Galen Research|accessdate=11 October 2013}} 39. ^{{cite journal |doi=10.1016/S0300-2896(09)72948-5 |title=Importancia de la fatiga, calidad del sueño y estado de ánimo en los pacientes con EPOC y la necesidad de disponer de instrumentos para su medición |trans-title=Importance of fatigue, sleep quality and mood in patients with chronic obstructive pulmonary disease and the need for measurement instruments |language=Spanish|year=2009 |last1=López-Campos |first1=José Luis |journal=Archivos de Bronconeumología |volume=45 |pages=2–6 |pmid=20116755}} 40. ^{{cite journal |doi=10.1097/00005650-200210000-00009 |title=Psychometric Properties of the SF-12 (Hebrew Version) in a Primary Care Population in Israel |year=2002 |last1=Amir |first1=Marianne |last2=Lewin-Epstein |first2=Noah |last3=Becker |first3=Gideon |last4=Buskila |first4=Dan |journal=Medical Care |volume=40 |issue=10 |pages=918–28 |pmid=12395025}} 41. ^{{cite journal |doi=10.1016/0168-8510(92)90005-V |title=A new measure of quality of life in depression: Testing the reliability and construct validity of the QLDS |year=1992 |last1=McKenna |first1=Stephen P. |last2=Hunt |first2=Sonja M. |journal=Health Policy |volume=22 |issue=3 |pages=321–30 |pmid=10122731}} 42. ^{{cite journal |pmid=14639509 |year=2003 |last1=Baca Baldomero |first1=E |last2=Cervera Enguix |first2=S |last3=Grupo De Estudio |first3=Teseo |title=Quality of life, in depressed patients in Primary Health Care setting. Effectiveness and safety of venlafaxine extended release |volume=31 |issue=6 |pages=331–8 |journal=Actas Espanolas de Psiquiatria}} 43. ^{{cite journal |doi=10.1016/S0022-3956(02)00060-2 |title=Duloxetine 60 mg once daily dosing versus placebo in the acute treatment of major depression |year=2002 |last1=Detke |first1=Michael J. |last2=Lu |first2=Yili |last3=Goldstein |first3=David J. |last4=McNamara |first4=Robert K. |last5=Demitrack |first5=Mark A. |journal=Journal of Psychiatric Research |volume=36 |issue=6 |pages=383–90 |pmid=12393307}} 44. ^{{cite journal |doi=10.1186/1471-244X-7-43 |title=Duloxetine in the treatment of major depressive disorder: An open-label study |year=2007 |last1=Hudson |first1=James I |last2=Perahia |first2=David G |last3=Gilaberte |first3=Inmaculada |last4=Wang |first4=Fujun |last5=Watkin |first5=John G |last6=Detke |first6=Michael J |journal=BMC Psychiatry |volume=7 |pages=43 |pmid=17725843 |pmc=2018694}} {{open access}} 45. ^{{cite journal |pmid=16841626 |year=2006 |last1=Kornstein |first1=SG |last2=Wohlreich |first2=MM |last3=Mallinckrodt |first3=CH |last4=Watkin |first4=JG |last5=Stewart |first5=DE |title=Duloxetine efficacy for major depressive disorder in male vs. Female patients: Data from 7 randomized, double-blind, placebo-controlled trials |volume=67 |issue=5 |pages=761–70 |journal=The Journal of Clinical Psychiatry |doi=10.4088/JCP.v67n0510}} 46. ^{{cite journal |pmid=15014623 |year=2001 |last1=Dunner |first1=DL |last2=Kwong |first2=WJ |last3=Houser |first3=TL |last4=Richard |first4=NE |last5=Donahue |first5=RM |last6=Khan |first6=ZM |title=Improved Health-Related Quality of Life and Reduced Productivity Loss After Treatment with Bupropion Sustained Release: A Study in Patients with Major Depression |volume=3 |issue=1 |pages=10–16 |pmc=181153 |journal=Primary Care Companion to the Journal of Clinical Psychiatry |doi=10.4088/PCC.v03n0103}} 47. ^{{cite journal|last=Vickrey|first=B.G.|title=A procedure for developing a quality-of-life measure for epilepsy surgery patients|journal=Epilepsia|year=1993|volume=34|issue=Suppl. 4|pages=S22–S27|pmid=8348900|doi=10.1111/j.1528-1157.1993.tb05912.x}} 48. ^{{cite web|title=Epilepsy Surgery Inventory 55 Survey (ESI-55)|url=http://www.rand.org/health/surveys_tools/esi.html|website=RAND.org|publisher=RAND Health|accessdate=27 November 2013}} 49. ^{{cite journal|last=Selai|first=C.E.|author2=Elstner, K |author3=Trimble, M.R. |title=Quality of life pre and post epilepsy surgery|journal=Epilepsy Research|year=2000|volume=38|issue=1|pages=67–74|url=http://www.epires-journal.com/article/S0920-1211(99)00075-3/abstract|accessdate=27 November 2013|pmid=10604607|doi=10.1016/s0920-1211(99)00075-3}} 50. ^{{cite journal|last=de Conceicao|first=P.O.|author2=Nascimento, P.P. |author3=Mazetto, L. |author4=Alonso, N.B. |author5=Yacubian, E.M. |author6= de Araujo Filho, G.M. |title=Are psychiatric disorders exclusion criteria for video-EEG monitoring and epilepsy surgery in patients with mesial temporal sclerosis?|journal=Epilepsy & Behavior|year=2013|volume=27|issue=2|pages=310–314|doi=10.1016/j.yebeh.2013.02.014|pmid=23523814|url=http://www.sciencedirect.com/science/article/pii/S1525505013000644|accessdate=27 November 2013}} 51. ^{{cite journal|last=Monteiro Ede|first=A.|author2=Osorio Fde, L.; Veriano, A Jr.; Molina, R.S.; Funayama, S.S.; Terra, V.C.; Velasco, T.R.;Guarnieri, R.; Bianchin, M.; Assirati, J.A. Jr.; Sakamoto, A.C.; Hallak, J.E.|title=Validation of the Subjective Handicap of Epilepsy (SHE) in Brazilian patients with epilepsy|journal=Epilepsy & Behavior|year=2012|volume=24|issue=3|pages=345–351|doi=10.1016/j.yebeh.2012.04.129|pmid=22658433|url=http://www.sciencedirect.com/science/article/pii/S152550501200337X|accessdate=27 November 2013}} 52. ^{{cite journal|last=Mangione|first=Carol M.|author2=Lee, Paul P. |author3=Gutierrez, Peter R. |author4=Spritzer, Karen |author5=Berry, Sandra |author6= Hays, Ron D. |title=Development of the 25-list-item National Eye Institute Visual Function Questionnaire|journal=Archives of Ophthalmology|year=2001|volume=119|issue=7|pages=1050–1058|doi=10.1001/archopht.119.7.1050|pmid=11448327|url=http://archopht.jamanetwork.com/article.aspx?articleid=267134|accessdate=26 November 2013}} 53. ^{{cite journal|last=Orr|first=Peggy|author2=Rentz, Anne M. |author3=Margolis, Mary Kay |author4=Revicki, Dennis A. |author5=Dolan, Chantal M. |author6=Colman, Shoshana |author7=Fine, Jennifer T. |author8= Bressler, Neil M. |title=Validation of the National Eye Institute Visual Function Questionnaire-25 (NEI VFQ-25) in Age-Related Macular Degeneration|journal=Investigative Ophthalmology and Visual Science|year=2011|volume=52|issue=6|pages=3354–3359|doi=10.1167/iovs.10-5645|pmid=21282568|url=http://www.iovs.org/content/52/6/3354.long|accessdate=26 November 2013}} 54. ^{{cite journal|last=Kirwan|first=Caitriona|author2=Lanigan, Bernadette; O'Keefe, Michael|title=Vision-Related Quality of Life Assessment Using the NEI-VFQ-25 in Adolescents and Young Adults With a History of Congenital Cataract|journal=Journal of Pediatric Ophthalmology and Strabismus|year=2012|volume=49|issue=1|pages=26–31|doi=10.3928/01913913-20110517-02|pmid=21598855|url=http://www.healio.com/ophthalmology/journals/jpos/%7B749e39aa-ab97-4b64-bff0-776af5b721a7%7D/vision-related-quality-of-life-assessment-using-the-nei-vfq-25-in-adolescents-and-young-adults-with-a-history-of-congenital-cataract#|accessdate=26 November 2013}} 55. ^{{cite journal|last=Naik|first=Rupali K.|author2=Gries, Katharine S. |author3=Rentz, Anne M. |author4=Kowalski, Jonathan W. |author5= Revicki, Dennis A. |title=Psychometric evaluation of the National Eye Institute Visual Function Questionnaire and Visual Function Questionnaire Utility Index in patients with non-infectious intermediate and posterior uveitis|journal=Quality of Life Research|volume=22|issue=10|pages=2801–8|year=2013|doi=10.1007/s11136-013-0412-y|pmid=23645458}} 56. ^{{cite journal |doi=10.1177/1352458509106714 |title=The development and validation of the Unidimensional Fatigue Impact Scale (U-FIS) |year=2009 |last1=Meads |first1=D. |last2=Doward |first2=L. |last3=McKenna |first3=S. |last4=Fisk |first4=J. |last5=Twiss |first5=J. |last6=Eckert |first6=B. |journal=Multiple Sclerosis |volume=15 |issue=10 |pages=1228–38 |pmid=19556314}} 57. ^{{cite journal |doi=10.1007/s11136-011-0009-2 |title=Self-report fatigue questionnaires in multiple sclerosis, Parkinson's disease and stroke: A systematic review of measurement properties |year=2011 |last1=Elbers |first1=Roy G. |last2=Rietberg |first2=Marc B. |last3=Van Wegen |first3=Erwin E. H. |last4=Verhoef |first4=John |last5=Kramer |first5=Sharon F. |last6=Terwee |first6=Caroline B. |last7=Kwakkel |first7=Gert |journal=Quality of Life Research |volume=21 |issue=6 |pages=925–44 |pmid=22012025 |pmc=3389599}} 58. ^{{cite web|title=Measures Database|url=http://www.galen-research.com/measures-database/|website=Galen-Research.com|publisher=Galen Research|accessdate=20 November 2013}} 59. ^{{cite journal |vauthors=Richardson J, Iezzi A, Khan M, Maxwell A |title=Validity and Reliability of the Assessment of Quality of Life (AQoL)-8D Multi-Attribute Utility Instrument |journal=The Patient-Patient Centered Outcomes |volume=7 |issue=1 |pages=85–96 |year=2014 |doi=10.1007/s40271-013-0036-x |pmid=24271592 |pmc=3929769 }} 60. ^{{cite journal |vauthors=Maxwell A, ((Özmen M)), Iezzi A, Richardson J |title=Deriving population norms for the AQoL-6D and AQoL-8D multi-attribute utility instruments from web-based data |journal=Quality of Life Research |volume=25 |issue=7 |pages=3209–3219 |year=2016 |doi=10.1007/s11136-016-1337-z |pmid=27344318 }} 61. ^{{cite book|last=Kattan|first=Michael|title=Encyclopedia of Medical Decision Making|year=2009|publisher=SAGE Publications |isbn=978-1-4129-7198-0|url=http://knowledge.sagepub.com/view/medical/n273.xml}} 62. ^{{cite journal |doi=10.1023/A:1018456031659 |year=1997 |last1=Kaplan |first1=R. M. |last2=Patterson |first2=T. L. |last3=Kerner |first3=D. N. |last4=Atkinson |first4=J. |last5=Heaton |first5=R. K. |last6=Grant |first6=I. |journal=Quality of Life Research |volume=6 |issue=6 |pages=507–14 |pmid=9330551 |title=The Quality of Well-Being scale in asymptomatic HIV-infected patients. HNRC Group. HIV Neural Behavioral Research Center}} 63. ^{{cite journal |doi=10.1177/0272989X9701700409 |title=Construct Validities of the Quality of Well-Being Scale and the MOS-HIV-34 Health Survey for HIV-infected Patients |year=1997 |last1=Hughes |first1=T. E. |last2=Kaplan |first2=R. M. |last3=Coons |first3=S. J. |last4=Draugalis |first4=J. R. |last5=Johnson |first5=J. A. |last6=Patterson |first6=T. L. |journal=Medical Decision Making |volume=17 |issue=4 |pages=439–46 |pmid=9343802|citeseerx=10.1.1.1004.6037 }} 64. ^{{cite journal |doi=10.1002/art.20071 |pmid=14872452 |title=Validity of self-administered quality of well-being scale in musculoskeletal disease |year=2004 |last1=Frosch |first1=Dominick L. |last2=Kaplan |first2=Robert M. |last3=Ganiats |first3=Theodore G. |last4=Groessl |first4=Erik J. |last5=Sieber |first5=William J. |last6=Weisman |first6=Michael H. |journal=Arthritis & Rheumatism |volume=51 |issue=1 |pages=28–33}} 65. ^{{cite journal |doi=10.1016/0168-8510(96)00822-6 |title=EuroQol: The current state of play |year=1996 |last1=Brooks |first1=Richard |journal=Health Policy |volume=37 |pages=53–72 |pmid=10158943 |issue=1}} 66. ^{{cite web|title=Euroqol EQ-5D (EQ-5D)|url=http://www.proqolid.org/instruments/euroqol_eq_5d_eq_5d?fromSearch=yes&text=yes|website=PROQOLID.org|publisher=Mapi Research Trust|accessdate=20 November 2013}} 67. ^{{cite journal |pmid=24246044 |year=2013 |last1=Desroziers |first1=K |last2=Aballéa |first2=S |last3=Maman |first3=K |last4=Nazir |first4=J |last5=Odeyemi |first5=I |last6=Hakimi |first6=Z |title=Estimating EQ-5D and OAB-5D health state utilities for patients with overactive bladder |volume=11 |issue=1 |pages=200 |doi=10.1186/1477-7525-11-200 |journal=Health and Quality of Life Outcomes |pmc=3842710}} {{open access}} 68. ^{{cite journal |doi=10.1007/s10198-013-0540-x |pmid=24233919 |title=Validity and responsiveness of the EQ-5D and the KIDSCREEN-10 in children with ADHD |year=2013 |last1=Bouwmans |first1=Clazien |last2=Kolk |first2=Annemarie |last3=Oppe |first3=Mark |last4=Schawo |first4=Saskia |last5=Stolk |first5=Elly |last6=Agthoven |first6=Michel |last7=Buitelaar |first7=Jan |last8=Roijen |first8=Leonahakkaart |journal=The European Journal of Health Economics|volume=15 |issue=9 |pages=967–77 }} 69. ^{{cite journal |doi=10.1016/j.bone.2013.11.002 |pmid=24231131 |title=Denosumab: A cost-effective alternative for older men with osteoporosis from a Swedish payer perspective |year=2013 |last1=Parthan |first1=A. |last2=Kruse |first2=M. |last3=Agodoa |first3=I. |last4=Silverman |first4=S. |last5=Orwoll |first5=E. |journal=Bone|volume=59 |pages=105–13 }} 70. ^{{cite journal |doi=10.1016/0271-7123(81)90005-5 |title=The Nottingham health profile: Subjective health status and medical consultations |year=1981 |last1=Hunt |first1=Sonja M. |last2=McKenna |first2=S.P. |last3=McEwen |first3=J. |last4=Williams |first4=Jan |last5=Papp |first5=Evelyn |journal=Social Science & Medicine. Part A: Medical Psychology & Medical Sociology |volume=15 |issue=3 |pages=221–9 |pmid=6973203}} 71. ^{{cite journal |doi=10.1136/jech.40.2.166 |title=Use of the Nottingham Health Profile with patients after a stroke |year=1986 |last1=Ebrahim |first1=S |last2=Barer |first2=D |last3=Nouri |first3=F |journal=Journal of Epidemiology & Community Health |volume=40 |issue=2 |pages=166–9 |pmid=3746178 |pmc=1052513}} 72. ^{{cite journal |pmid=3989783 |year=1985 |last1=Hunt |first1=SM |last2=McEwen |first2=J |last3=McKenna |first3=SP |title=Measuring health status: A new tool for clinicians and epidemiologists |volume=35 |issue=273 |pages=185–8 |pmc=1960139 |journal=The Journal of the Royal College of General Practitioners}} 73. ^{{cite journal |doi=10.1093/ndt/gfr697 |title=Systematic review of the impact of erythropoiesis-stimulating agents on fatigue in dialysis patients |year=2011 |last1=Johansen |first1=K. L. |last2=Finkelstein |first2=F. O. |last3=Revicki |first3=D. A. |last4=Evans |first4=C. |last5=Wan |first5=S. |last6=Gitlin |first6=M. |last7=Agodoa |first7=I. L. |journal=Nephrology Dialysis Transplantation |volume=27 |issue=6 |pages=2418–25 |pmid=22187314}} 74. ^{{cite journal |doi=10.1111/j.1365-2265.2011.04074.x |title=Optimizing glucocorticoid replacement therapy in severely adrenocorticotropin-deficient hypopituitary male patients |year=2011 |last1=Behan |first1=Lucy-Ann |last2=Rogers |first2=Bairbre |last3=Hannon |first3=Mark J. |last4=O'Kelly |first4=Patrick |last5=Tormey |first5=William |last6=Smith |first6=Diarmuid |last7=Thompson |first7=Christopher J. |last8=Agha |first8=Amar |journal=Clinical Endocrinology |volume=75 |issue=4 |pages=505–13 |pmid=21521342}} 75. ^{{cite journal |doi=10.1017/S0022215106000910 |title=Treatment of tinnitus with transcutaneous electrical nerve stimulation improves patients' quality of life |year=2006 |last1=Aydemir |first1=G |last2=Tezer |first2=M S |last3=Borman |first3=P |last4=Bodur |first4=H |last5=Unal |first5=A |journal=The Journal of Laryngology & Otology |volume=120 |issue=6 |pmid=16556347 |pages=442–5}} 76. ^{{cite web|title=36-Item Short Form Survey from the RAND Medical Outcomes Study|url=http://www.rand.org/health/surveys_tools/mos/mos_core_36item.html|website=RAND.org|publisher=RAND|accessdate=20 November 2013}} 77. ^{{cite journal |doi= 10.1097/00005650-199206000-00002 |title= The MOS 36-ltem Short-Form Health Survey (SF-36) |year= 1992 |last1= Ware |first1= John E. |last2= Sherbourne |first2= Cathy Donald |journal= Medical Care |volume= 30 |issue= 6 |pages= 473–83 |pmid= 1593914}} 78. ^{{cite journal |doi=10.1016/j.ajg.2013.08.004 |title=Giardia intestinalis in patients with nonulcer dyspepsia |year=2013 |last1=Abulhasan |first1=Mohamad |last2=Elshazly |first2=Tarek A. |last3=Eida |first3=Mohamad |last4=Albadry |first4=Ayman |journal=Arab Journal of Gastroenterology |volume=14 |issue=3 |pages=126–9 |pmid=24206742}} 79. ^{{cite journal |pmid=24249424 |pmc=3943705 |year=2013 |last1=Cuevas |first1=BT |last2=Hughes |first2=DC |last3=Parma |first3=DL |last4=Treviño-Whitaker |first4=RA |last5=Ghosh |first5=S |last6=Li |first6=R |last7=Ramirez |first7=AG |title=Motivation, exercise, and stress in breast cancer survivors |doi=10.1007/s00520-013-2038-6 |journal=Supportive Care in Cancer|volume=22 |issue=4 |pages=911–7 }} 80. ^{{cite journal |doi=10.1176/appi.neuropsych.12070175 |pmid=24247858 |pmc=3960993 |title=Associations of Sleep Disturbance Symptoms with Health-Related Quality of Life in Parkinson's Disease |year=2013 |last1=Avidan |first1=Alon |last2=Hays |first2=Ron D. |last3=Diaz |first3=Natalie |last4=Bordelon |first4=Yvette |last5=Thompson |first5=Alexander W. |last6=Vassar |first6=Stefanie D. |last7=Vickrey |first7=Barbara G. |journal=Journal of Neuropsychiatry |volume=25 |issue=4 |pages=319–326}} 81. ^{{cite journal |pmid=1200192 |year=1975 |last1=Gilson |first1=BS |last2=Gilson |first2=JS |last3=Bergner |first3=M |last4=Bobbit |first4=RA |last5=Kressel |first5=S |last6=Pollard |first6=WE |last7=Vesselago |first7=M |title=The sickness impact profile. Development of an outcome measure of health care |volume=65 |issue=12 |pages=1304–10 |pmc=1776251 |journal=American Journal of Public Health |doi=10.2105/AJPH.65.12.1304}} 82. ^{{cite journal |doi=10.1161/01.STR.28.11.2155 |title=A Stroke-Adapted 30-Item Version of the Sickness Impact Profile to Assess Quality of Life (SA-SIP30) |year=1997 |last1=Van Straten |first1=A. |last2=De Haan |first2=R. J. |last3=Limburg |first3=M. |last4=Schuling |first4=J. |last5=Bossuyt |first5=P. M. |last6=Van Den Bos |first6=G. A. M. |journal=Stroke |volume=28 |issue=11 |pages=2155–61 |pmid=9368557}} 83. ^{{cite journal |doi=10.5455/aim.2013.21.160-165 |title=Sickness Impact Profile (SIP) Score, a Good Alternative Instrument for Measuring Quality of Life in Patients with Ileal Urinary Diversions |year=2013 |last1=Prcic |first1=Alden |last2=Aganovic |first2=Damir |last3=Hadziosmanovic |first3=Osman |journal=Acta Informatica Medica |volume=21 |issue=3 |pages=160–5 |pmid=24167383 |pmc=3804474}} 84. ^{{cite journal |doi=10.1007/BF01713939 |title=Measuring quality of life with the sickness impact profile: A pilot study |year=1991 |last1=Hulsebos |first1=R. G. |last2=Beltman |first2=F. W. |last3=Dos Reis Miranda |first3=D. |last4=Spangenberg |first4=J. F. A. |journal=Intensive Care Medicine |volume=17 |issue=5 |pages=285–8 |pmid=1939874}} 85. ^{{cite journal |doi=10.1186/1477-7525-1-54 |year=2003 |last1=Horsman |first1=John |last2=Furlong |first2=William |last3=Feeny |first3=David |last4=Torrance |first4=George |journal=Health and Quality of Life Outcomes |volume=1 |pages=54 |pmid=14613568 |title=The Health Utilities Index (HUI): Concepts, measurement properties and applications |pmc=293474}} {{open access}} 86. ^{{cite journal |pmid=11491197 |year=2001 |last1=Furlong |first1=WJ |last2=Feeny |first2=DH |last3=Torrance |first3=GW |last4=Barr |first4=RD |title=The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies |volume=33 |issue=5 |pages=375–84 |journal=Annals of Medicine |doi=10.3109/07853890109002092}} 87. ^{{cite journal |doi=10.3899/jrheum.130176 |pmid=24187098 |title=Responsiveness of Health State Utility Values in Knee Osteoarthritis |year=2013 |last1=Davis |first1=E. M. |last2=Lynd |first2=L. D. |last3=Grubisic |first3=M. |last4=Kopec |first4=J. A. |last5=Sayre |first5=E. C. |last6=Cibere |first6=J. |last7=Esdaile |first7=J. |last8=Marra |first8=C. A. |journal=The Journal of Rheumatology|volume=40 |issue=12 |pages=2075–82 }} 88. ^{{cite journal |doi=10.1016/j.ajog.2013.09.025 |title=Validity of utility measures for women with urge, stress, and mixed urinary incontinence |year=2013 |last1=Harvie |first1=Heidi S. |last2=Shea |first2=Judy A. |last3=Andy |first3=Uduak U. |last4=Propert |first4=Kate |last5=Schwartz |first5=J. Sanford |last6=Arya |first6=Lily A. |journal=American Journal of Obstetrics and Gynecology|volume=210 |issue=1 |pages=85.e1–6 |pmid=24055585}} 89. ^{{cite journal |doi=10.1177/1367493513496909 |pmid=23939724 |title=Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission |year=2013 |last1=Ebrahim |first1=S. |last2=Parshuram |first2=C. |journal=Journal of Child Health Care |volume=19 |issue=1 |pages=53–62}} 90. ^{{cite journal |doi=10.1016/S1098-3015(10)61938-9 |title=Pin41 Development of the Herpes Outbreak Impact Questionnaire (Hoiq) |year=2003 |last1=Doward |first1=LC |last2=McKenna |first2=SP |last3=Meads |first3=DM |journal=Value in Health |volume=6 |issue=6 |pages=760–761}} 91. ^{{cite journal |doi=10.1111/j.1524-4733.2008.00450.x |title=Further Validation and Responsiveness Assessment of the Herpes Outbreak Impact Questionnaire and Herpes Symptom Checklist |year=2009 |last1=Meads |first1=David M. |last2=McKenna |first2=Stephen P. |last3=Bonney |first3=Mary-Ann |last4=Bloch |first4=Mark T. |journal=Value in Health |volume=12 |issue=2 |pages=397–400 |pmid=18783390}} 92. ^{{cite journal |doi=10.1111/j.1524-4733.2008.00424.x |title=The Development of the Herpes Symptom Checklist and the Herpes Outbreak Impact Questionnaire |year=2009 |last1=Doward |first1=Lynda C. |last2=McKenna |first2=Stephen P. |last3=Meads |first3=David M. |last4=Kahler |first4=Kristijan |last5=Frech |first5=Feride |journal=Value in Health |volume=12 |pages=139–45 |pmid=18647252 |issue=1}} 93. ^{{cite journal |doi=10.1016/j.jval.2011.08.193 |title=PIN5 Patient and Clinician Perceived Benefit of Early Consumption of Famciclovir for the Treatment of Herpes Outbreaks |year=2011 |last1=Twiss |first1=J. |last2=McKenna |first2=S. |last3=Bloch |first3=M. |last4=Bonney |first4=M.A. |journal=Value in Health |volume=14 |issue=7 |pages=A266}} 94. ^{{cite journal |doi=10.1023/A:1008857426633 |year=1998 |last1=Doward |first1=L. C |last2=McKenna |first2=S. P |last3=Kohlmann |first3=T |last4=Niero |first4=M |last5=Patrick |first5=D |last6=Spencer |first6=B |last7=Thorsen |first7=H. |journal=Quality of Life Research |volume=7 |issue=2 |pages=143–53 |pmid=9523496 |title=The international development of the RGHQoL: A quality of life measure for recurrent genital herpes}} 95. ^{{cite journal |doi=10.1016/j.jcv.2008.06.004 |title=Famciclovir treatment options for patients with frequent outbreaks of recurrent genital herpes: The RELIEF trial |year=2008 |last1=Bartlett |first1=Brenda L. |last2=Tyring |first2=Stephen K. |last3=Fife |first3=Kenneth |last4=Gnann Jr |first4=John W. |last5=Hadala |first5=Joseph T. |last6=Kianifard |first6=Farid |last7=Berber |first7=Erhan |journal=Journal of Clinical Virology |volume=43 |issue=2 |pages=190–5 |pmid=18621575}} 96. ^{{cite journal |pmid=10754944 |year=1999 |last1=Patel |first1=R |last2=Tyring |first2=S |last3=Strand |first3=A |last4=Price |first4=MJ |last5=Grant |first5=DM |title=Impact of suppressive antiviral therapy on the health related quality of life of patients with recurrent genital herpes infection |volume=75 |issue=6 |pages=398–402 |pmc=1758256 |journal=Sexually Transmitted Infections |doi=10.1136/sti.75.6.398}} 97. ^{{cite journal |pmid=10472169 |year=1999 |last1=Spencer |first1=B |last2=Leplège |first2=A |last3=Ecosse |first3=E |title=Recurrent genital herpes and quality of life in France |volume=8 |issue=4 |pages=365–71 |journal=Quality of Life Research |doi=10.1023/A:1008904227182}} 98. ^{{cite journal |pmid=11564330 |year=2001 |last1=Patel |first1=R |last2=Boselli |first2=F |last3=Cairo |first3=I |last4=Barnett |first4=G |last5=Price |first5=M |last6=Wulf |first6=HC |title=Patients' perspectives on the burden of recurrent genital herpes |volume=12 |issue=10 |pages=640–5 |journal=International Journal of STD & AIDS |doi=10.1258/0956462011923859}} 99. ^1 {{cite journal |doi=10.1046/j.1365-2265.2000.00899.x |title=Application of a disease-specific, quality-of-life measure (QoL-AGHDA) in growth hormone-deficient adults and a random population sample in Sweden: Validation of the measure by Rasch analysis |year=2000 |last1=Wirén |first1=L. |journal=Clinical Endocrinology |volume=52 |issue=2 |pages=143–52 |pmid=10671940 |last2=Whalley |first2=D |last3=McKenna |first3=S |last4=Wilhelmsen |first4=L}} 100. ^{{cite journal |doi=10.1016/j.ghir.2011.07.005 |title=Prediction of improvement in quality of life (QoL-AGHDA) in adults with growth hormone deficiency by normative reference limits: Data of the German KIMS cohort |year=2011 |last1=Moock |first1=Joern |last2=Friedrich |first2=Nele |last3=Völzke |first3=Henry |last4=Spielhagen |first4=Christin |last5=Nauck |first5=Matthias |last6=Koltowska-Häggström |first6=Maria |last7=Buchfelder |first7=Michael |last8=Wallaschofski |first8=Henri |last9=Kohlmann |first9=Thomas |journal=Growth Hormone & IGF Research |volume=21 |issue=5 |pages=272–8 |pmid=21865066 }} 101. ^{{cite journal |doi=10.1111/j.1524-4733.2009.00689.x |title=Application of the Disease-Specific Quality of Life Assessment of Growth Hormone Deficiency in Adults (QoL-AGHDA) Questionnaire in a General Population: Results from a French Panel Study |year=2010 |last1=Gilet |first1=Hélène |last2=Chachuat |first2=Anne |last3=Viala-Danten |first3=Muriel |last4=Auzière |first4=Sébastien |last5=Koltowska-Häggström |first5=Maria |journal=Value in Health |volume=13 |issue=4 |pages=495–500 |pmid=20102556}} 102. ^{{cite journal |doi=10.1046/j.1365-2265.1998.00634.x |title=One-year follow-up of quality of life in adults with untreated growth hormone deficiency |year=1998 |last1=Badia |first1=X. |last2=Lucas |first2=A. |last3=Sanmartí |first3=A. |last4=Roset |first4=M. |last5=Ulied |first5=A. |journal=Clinical Endocrinology |volume=49 |issue=6 |pages=765–71 |pmid=10209564}} 103. ^{{cite journal |doi=10.1210/jc.2004-0832 |title=The Characteristics of Quality of Life Impairment in Adult Growth Hormone (GH)-Deficient Survivors of Cancer and Their Response to GH Replacement Therapy |year=2004 |last1=Mukherjee |first1=A. |last2=Tolhurst-Cleaver |first2=S. |last3=Ryder |first3=W. D. J. |last4=Smethurst |first4=L. |last5=Shalet |first5=S. M. |journal=Journal of Clinical Endocrinology & Metabolism |volume=90 |issue=3 |pages=1542–9 |pmid=15613427}} 104. ^{{cite journal |doi=10.1002/pds.1510 |title=Registries as a tool in evidence-based medicine: Example of KIMS (Pfizer International Metabolic Database) |year=2008 |last1=Gutiérrez |first1=Lia P. |last2=Kołtowska-Häggström |first2=Maria |last3=Jönsson |first3=Peter J. |last4=Mattsson |first4=Anders F. |last5=Svensson |first5=Dag |last6=Westberg |first6=Björn |last7=Luger |first7=Anton |journal=Pharmacoepidemiology and Drug Safety |volume=17 |pages=90–102 |pmid=17957812 |issue=1}} 105. ^{{cite journal|last=Hays|first=R.D.|author2=Kallich, J.D. |author3=Mapes, D.L. |author4=Coons, S.J. |author5= Carter, W.B. |title=Development of the Kidney Disease Quality of Life (KDQOLTM) Instrument|journal=Quality of Life Research|year=1994|volume=3|issue=5|pages=329–338|doi=10.1007/BF00451725|pmid=7841967}} 106. ^{{cite journal|last=Fan|first=W.F.|author2=Zhang, Q. |author3=Luo, L.H. |author4=Niu, J.Y. |author5= Gu, Y. |title=Study on the Clinical Significance and Related Factors of Thirst and Xerostomia in Maintenance Hemodialysis Patients|journal=Kidney and Blood Pressure Research|year=2013|volume=37|issue=4–5|pages=464–474|doi=10.1159/000355717|pmid=24247643|url=http://www.karger.com/Article/FullText/355717|accessdate=25 November 2013 }} 107. ^{{cite journal|last=Cortes-Sanabria|first=Laura|author2=Paredes-Cesena, Carlos A. |author3=Herrera-Llamas, Rebeca M. |author4=Cruz-Bueno, Yolanda |author5=Soto-Molina, Herman |author6=Pazarin, Leonardo |author7=Cortes, Margarita |author8= Martinez-Ramirez, Hector R. |title=Comparison of Cost-Utility Between Automated Peritoneal Dialysis and Continuous Ambulatory Peritoneal Dialysis|journal=Archives of Medical Research|year=2013|doi=10.1016/j.arcmed.2013.10.017|pmid=24211750|volume=44|issue=8|pages=655–61}} 108. ^{{cite journal|last=Fidan|first=F.|author2=Alkan, B.M. |author3=Tosun, A. |author4=Altunoglu, A |author5= Ardicoglu, O. |title=Quality of life and correlation with musculoskeletal problems, hand disability and depression in patients with hemodialysis|journal=International Journal of Rheumatic Disease|volume=19|issue=2|pages=159–166|year=2013|doi=10.1111/1756-185X.12171|pmid=24176031}} 109. ^{{cite journal |doi=10.1046/j.1526-4610.2000.00086.x |title=Further Development and Testing of the Migraine-Specific Quality of Life (MSQOL) Measure |year=2000 |last1=Patrick |first1=Donald L. |last2=Hurst |first2=Bryan C. |last3=Hughes |first3=Janette |journal=Headache: The Journal of Head and Face Pain |volume=40 |issue=7 |pages=550–560}} 110. ^{{cite journal |doi=10.1111/j.1468-2982.2007.01367.x |title=Impact of preventive therapy with nadolol and topiramate on the quality of life of migraine patients |year=2007 |last1=Garcia-Monco |first1=JC |last2=Foncea |first2=N |last3=Bilbao |first3=A |last4=Ruiz De Velasco |first4=I |last5=Gomez-Beldarrain |first5=M |journal=Cephalalgia |volume=27 |issue=8 |pages=920–8 |pmid=17645757}} 111. ^{{cite journal |doi=10.1093/fampra/cmr112 |title=A randomized trial on the effects of regular water intake in patients with recurrent headaches |year=2011 |last1=Spigt |first1=M. |last2=Weerkamp |first2=N. |last3=Troost |first3=J. |last4=Van Schayck |first4=C. P. |last5=Knottnerus |first5=J. A. |journal=Family Practice |volume=29 |issue=4 |pages=370–5 |pmid=22113647}} 112. ^{{cite journal |pmid=18197883 |year=2008 |last1=Mérelle |first1=SY |last2=Sorbi |first2=MJ |last3=Van Doornen |first3=LJ |last4=Passchier |first4=J |title=Migraine patients as trainers of their fellow patients in non-pharmacological preventive attack management: Short-term effects of a randomized controlled trial |volume=28 |issue=2 |pages=127–38 |doi=10.1111/j.1468-2982.2007.01472.x |journal=Cephalalgia |doi-broken-date=2019-03-14 }} 113. ^{{cite journal |doi=10.1177/1352458509106513 |title=The development of patient-reported outcome indices for multiple sclerosis (PRIMUS) |year=2009 |last1=Doward |first1=L. |last2=McKenna |first2=S. |last3=Meads |first3=D. |last4=Twiss |first4=J |last5=Eckert |first5=B. |journal=Multiple Sclerosis |volume=15 |issue=9 |pages=1092–102 |pmid=19556315}} 114. ^{{cite journal |doi=10.1177/1352458512459019 |title=Poster I |year=2012 |journal=Multiple Sclerosis Journal |volume=18 |issue=4 Suppl |pages=55–277}} 115. ^{{cite conference |last1=van Lokven |first1=T. |last2=Kempcke |first2=R. |last3=Ziemssen |first3=T. |last4=Meergans |first4=M. |title=Study design of a non-interventional registry study to establish long-term safety and pharmaco-economic data on fingolimod (Gilenya®) in multiple sclerosis patients (PANGAEA) |booktitle=5th Joint triennial congress of the European and Americas Committees for Treatment and Research in Multiple Sclerosis |date=October 20, 2011 |location=Amsterdam, The Netherlands |url=http://registration.akm.ch/einsicht.php?XNABSTRACT_ID=137571&XNSPRACHE_ID=2&XNKONGRESS_ID=150&XNMASKEN_ID=900 |accessdate=October 9, 2013 }}{{dead link|date=May 2017 |bot=InternetArchiveBot |fix-attempted=yes }} 116. ^{{cite journal|last=Cascione|first=Mark|author2=Wynn, Daniel |author3=Agashivala, Neetu |author4=McCague, Kevin |author5=Pestreich, Linda |author6=Schofield, Lesley |author7=Kim, Edward |author8= Barbato, Luigi |title=Patient-Reported Treatment Satisfaction, Reasons for Therapy Change, and Health-Related Quality of Life at Baseline from the Trial To Evaluate Patient OutComes, Safety and Tolerability of Fingolimod|journal=Neurology|date=12 February 2013|volume=80|issue=1|url=http://www.neurology.org/cgi/content/meeting_abstract/80/1_MeetingAbstracts/P03.222|accessdate=9 October 2013}} 117. ^{{cite journal |doi=10.1177/1352458512463481 |title=Randomised multicentre trial on safety and efficacy of rivastigmine in cognitively impaired multiple sclerosis patients |year=2012 |last1=Maurer |first1=M. |last2=Ortler |first2=S. |last3=Baier |first3=M. |last4=Meergans |first4=M. |last5=Scherer |first5=P. |last6=Hofmann |first6=W. |last7=Tracik |first7=F. |journal=Multiple Sclerosis Journal |volume=19 |issue=5 |pages=631–8 |pmid=23069874}} 118. ^{{cite journal |doi=10.1002/art.23714 |pmid=18512719 |title=Development and validation of a needs-based quality of life instrument for osteoarthritis |year=2008 |last1=Keenan |first1=Anne-Maree |last2=McKenna |first2=Stephen P. |last3=Doward |first3=Lynda C. |last4=Conaghan |first4=Philip G. |last5=Emery |first5=Paul |last6=Tennant |first6=Alan |journal=Arthritis & Rheumatism |volume=59 |issue=6 |pages=841–848}} 119. ^{{cite web|title=Treating painful hand osteoarthritis using low dose oral prednisolone- assessing short-term pain and imaging outcomes|url=https://www.clinicaltrialsregister.eu/ctr-search/trial/2009-011173-32/GB|website=EU Clinical Trials Register|publisher=European Medicines Agency|accessdate=20 November 2013}} 120. ^{{cite web|title=An open label study to assess the effectiveness of oral methotrexate in reducing pain in knee osteoarthritis|url=https://www.clinicaltrialsregister.eu/ctr-search/trial/2008-008237-11/GB|website=EU Clinical Trials Register|publisher=European Medicines Agency|accessdate=20 November 2013}} 121. ^{{cite web|title=HERO:Hydroxychloroquine Effectiveness in Reducing Symptoms of hand OA, a randomised, double-blind, placebo-controlled trial|url=https://www.clinicaltrialsregister.eu/ctr-search/trial/2011-004300-38/GB|website=Eu Clinical Trials Register|publisher=European Medicines Council|accessdate=20 November 2013}} 122. ^{{cite journal |doi=10.2310/7750.2014.14017|title=PCQoL: A Quality of Life Assessment Measure for Pachyonychia Congenita |year=2014 |last1=Abbas |first1=M. |last2=Schwartz |first2=M. |last3=Smith |first3=F.J.D. |last4=McLean |first4=W.H.I. |last5=Hull |first5=P. |journal=Journal of Cutaneous Medicine and Surgery |volume=19 |issue=1 |pages=57–65 |pmid=25775665 }} 123. ^1 {{cite journal |doi=10.1093/rheumatology/36.8.878 |title=The reliability and construct validity of the RAQoL: A rheumatoid arthritis-specific quality of life instrument |year=1997 |last1=De Jong |first1=Z. |last2=Van Der Heijde |first2=D. |last3=McKenna |first3=S. P. |last4=Whalley |first4=D. |journal=Rheumatology |volume=36 |issue=8 |pages=878–883}} 124. ^{{cite journal |doi=10.1093/rheumatology/kes296 |title=Literacy levels required to complete routinely used patient-reported outcome measures in rheumatology |year=2012 |last1=Adams |first1=J. |last2=Chapman |first2=J. |last3=Bradley |first3=S. |last4=Ryan |first4=S. J. |journal=Rheumatology |volume=52 |issue=3 |pages=460–4 |pmid=23118412}} 125. ^{{cite journal |doi=10.1136/annrheumdis-2011-201282 |title=Adding tocilizumab or switching to tocilizumab monotherapy in methotrexate inadequate responders: 24-week symptomatic and structural results of a 2-year randomised controlled strategy trial in rheumatoid arthritis (ACT-RAY) |year=2012 |last1=Dougados |first1=M. |last2=Kissel |first2=K. |last3=Sheeran |first3=T. |last4=Tak |first4=P. P. |last5=Conaghan |first5=P. G. |last6=Mola |first6=E. M. |last7=Schett |first7=G. |last8=Amital |first8=H. |last9=Navarro-Sarabia |first9=F. |last10=Hou |first10=A. |last11=Bernasconi |first11=C. |last12=Huizinga |first12=T. |journal=Annals of the Rheumatic Diseases |volume=72 |pages=43–50 |pmid=22562983 |issue=1 |pmc=3551223}} 126. ^{{cite web|title=Efficacy of tocilizumab in patients with rheumatoid arthritis|url=http://www.controlled-trials.com/ISRCTN21216199|website=Current Controlled Trials|publisher=Springer Science+Business Media.|accessdate=2 October 2013}} 127. ^{{cite journal |doi=10.1002/art.20712 |pmid=15641102 |title=Very early treatment with infliximab in addition to methotrexate in early, poor-prognosis rheumatoid arthritis reduces magnetic resonance imaging evidence of synovitis and damage, with sustained benefit after infliximab withdrawal: Results from a twelve-month randomized, double-blind, placebo-controlled trial |year=2005 |last1=Quinn |first1=Mark A. |last2=Conaghan |first2=Philip G. |last3=O'Connor |first3=Philip J. |last4=Karim |first4=Zunaid |last5=Greenstein |first5=Adam |last6=Brown |first6=Andrew |last7=Brown |first7=Clare |last8=Fraser |first8=Alexander |last9=Jarret |first9=Stephen |last10=Emery |first10=Paul |journal=Arthritis & Rheumatism |volume=52 |issue=1 |pages=27–35}} 128. ^{{cite journal |doi=10.1093/rheumatology/keq194 |title=Benefits 8 years after a remission induction regime with an infliximab and methotrexate combination in early rheumatoid arthritis |year=2010 |last1=Bejarano |first1=V. |last2=Conaghan |first2=P. G. |last3=Quinn |first3=M. A. |last4=Saleem |first4=B. |last5=Emery |first5=P. |journal=Rheumatology |volume=49 |issue=10 |pages=1971–4 |pmid=20595536}} 129. ^{{cite journal |doi=10.1186/1477-7525-6-65 |title=Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses |year=2008 |last1=McKenna |first1=Stephen P |last2=Ratcliffe |first2=Julie |last3=Meads |first3=David M |last4=Brazier |first4=John E |journal=Health and Quality of Life Outcomes |volume=6 |pages=65 |pmid=18718016 |pmc=2546377}} {{open access}} 130. ^{{cite journal |doi=10.1007/s11136-005-3513-4 |title=The Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR): A Measure of Health-Related Quality of Life and Quality of Life for Patients with Pulmonary Hypertension |year=2006 |last1=McKenna |first1=S. P. |last2=Doughty |first2=N. |last3=Meads |first3=D. M. |last4=Doward |first4=L. C. |last5=Pepke-Zaba |first5=J. |journal=Quality of Life Research |volume=15 |pages=103–15 |pmid=16411035 |issue=1}} 131. ^{{cite web|title=Measures Database|url=http://www.galen-research.com/measures-database/|website=Galen-Research.com|publisher=Galen Research|accessdate=2 October 2013}} 132. ^{{cite journal |doi=10.2147/DDDT.S19281 |title=Inhaled treprostinil: A therapeutic review |year=2012 |last1=Channick |first1=Richard |last2=Voswinckel |last3=Rubin |first3=Lewis |last4=Vultaggio |journal=Drug Design, Development and Therapy |pages=19–28 |pmid=22291467 |volume=6 |pmc=3267519}} 133. ^{{cite journal |doi=10.1186/1477-7525-11-31 |title=Treatment satisfaction is associated with improved quality of life in patients treated with inhaled treprostinil for pulmonary arterial hypertension |year=2013 |last1=Chen |first1=Hubert |last2=Rosenzweig |first2=Erika B |last3=Gotzkowsky |first3=S Karl |last4=Arneson |first4=Carl |last5=Nelsen |first5=Andrew C |last6=Bourge |first6=Robert C |journal=Health and Quality of Life Outcomes |volume=11 |pages=31 |pmid=23496856 |pmc=3610124}} {{open access}} 134. ^{{cite journal |doi=10.1016/j.ijcard.2010.02.020 |title=Quality of life and functional capacity can be improved in patients with Eisenmenger syndrome with oral sildenafil therapy |year=2011 |last1=Tay |first1=Edgar L.W. |last2=Papaphylactou |first2=Maria |last3=Diller |first3=Gerhard Paul |last4=Alonso-Gonzalez |first4=Rafael |last5=Inuzuka |first5=Ryo |last6=Giannakoulas |first6=Georgios |last7=Harries |first7=Carl |last8=Wort |first8=Stephen John |last9=Swan |first9=Lorna |last10=Dimopoulos |first10=Konstantinos |last11=Gatzoulis |first11=Michael A. |journal=International Journal of Cardiology |volume=149 |issue=3 |pages=372–6 |pmid=20304507}} 135. ^{{cite journal |doi=10.1378/chest.07-2681 |title=Long-term Use of Sildenafil in Inoperable Chronic Thromboembolic Pulmonary Hypertension |year=2008 |last1=Suntharalingam |first1=Jay |last2=Treacy |first2=C. M. |last3=Doughty |first3=N. J. |last4=Goldsmith |first4=K |last5=Soon |first5=E |last6=Toshner |first6=M. R. |last7=Sheares |first7=K. K. |last8=Hughes |first8=R |last9=Morrell |first9=N. W. |last10=Pepke-Zaba |first10=J |journal=Chest |volume=134 |issue=2 |pages=229–36 |pmid=18263674}} 136. ^{{cite journal |doi=10.1111/j.1365-4632.2005.01941.x |title=Development of the US PSORIQoL: A psoriasis-specific measure of quality of life |year=2005 |last1=McKenna |first1=Stephen P. |last2=Lebwohl |first2=Mark |last3=Kahler |first3=Kristijan N. |journal=International Journal of Dermatology |volume=44 |issue=6 |pages=462–9 |pmid=15941432}} 137. ^{{cite journal |doi=10.1046/j.1365-2133.2003.05492.x |title=Development of the PSORIQoL, a psoriasis-specific measure of quality of life designed for use in clinical practice and trials |year=2003 |last1=McKenna |first1=S.P. |last2=Cook |first2=S.A. |last3=Whalley |first3=D. |last4=Doward |first4=L.C. |last5=Richards |first5=H.L. |last6=Griffiths |first6=C.E.M. |last7=Van Assche |first7=D. |authorlink6=Chris Griffiths (dermatologist) |journal=British Journal of Dermatology |volume=149 |issue=2 |pages=323–31 |pmid=12932239}} 138. ^{{cite web|title=Measures Database|url=http://www.galen-research.com/measures-database/|website=Galen-Research.com|publisher=Galen Research|accessdate=13 November 2013}} 139. ^{{cite web|title=Psoriasis: management of psoriasis|url=http://www.nice.org.uk/nicemedia/live/12344/58871/58871.pdf|website=NICE.org.uk|publisher=National Institute for Health and Care Excellence|accessdate=13 November 2013|deadurl=yes|archiveurl=https://web.archive.org/web/20131113124018/http://www.nice.org.uk/nicemedia/live/12344/58871/58871.pdf|archivedate=13 November 2013|df=}} 140. ^{{cite web|title=CAEB071C2201|url=https://www.clinicaltrialsregister.eu/ctr-search/trial/2007-007160-19/GB|website=ClinicalTrialsRegister.eu|publisher=EU Clinical Trials Register|accessdate=13 November 2013}} 141. ^{{cite journal |doi=10.3109/03009740903468982 |title=Comparison of the Psoriatic Arthritis Quality of Life (PsAQoL) questionnaire, the functional status (HAQ) and utility (EQ-5D) measures in psoriatic arthritis: Results from a cross-sectional survey |year=2010 |last1=Brodszky |first1=V |last2=Péntek |first2=M |last3=Bálint |first3=PV |last4=Géher |first4=P |last5=Hajdu |first5=O |last6=Hodinka |first6=L |last7=Horváth |first7=G |last8=Koó |first8=É |last9=Polgár |first9=A |last10=Seszták |first10=M |last11=Szántó |first11=S |last12=Ujfalussy |first12=I |last13=Gulácsi |first13=L |journal=Scandinavian Journal of Rheumatology |volume=39 |issue=4 |pages=303–9 |pmid=20166848}} 142. ^{{cite journal |doi=10.1136/ard.2003.006296 |title=Development of the PsAQoL: A quality of life instrument specific to psoriatic arthritis |year=2004 |last1=McKenna |first1=S P |journal=Annals of the Rheumatic Diseases |volume=63 |issue=2 |pages=162–9 |pmid=14722205 |last2=Doward |first2=LC |last3=Whalley |first3=D |last4=Tennant |first4=A |last5=Emery |first5=P |last6=Veale |first6=DJ |pmc=1754880}} 143. ^{{cite journal |doi=10.1136/ard.2006.063818 |title=Efficacy of infliximab on MRI-determined bone oedema in psoriatic arthritis |year=2007 |last1=Marzo-Ortega |first1=H. |last2=McGonagle |first2=D. |last3=Rhodes |first3=L. A |last4=Tan |first4=A. |last5=Conaghan |first5=P. G |last6=O'Connor |first6=P. |last7=Tanner |first7=S. F |last8=Fraser |first8=A. |last9=Veale |first9=D. |last10=Emery |first10=P. |journal=Annals of the Rheumatic Diseases |volume=66 |issue=6 |pages=778–81 |pmid=17185324 |pmc=1954680}} 144. ^{{ClinicalTrialsGov|NCT00427362|A Canadian Open-Label Study to Evaluate the Safety and Effectiveness of Adalimumab When Added to Inadequate Therapy for the Treatment of Psoriatic Arthritis (PsA) (ACCLAIM)}} 145. ^{{cite journal |doi=10.1097/PRS.0b013e3181d4fd89 |title=The Patient-Reported Impact of Scars Measure: Development and Validation |year=2010 |last1=Brown |first1=Benjamin C. |last2=McKenna |first2=Stephen P. |last3=Solomon |first3=Mattea |last4=Wilburn |first4=Jeanette |last5=McGrouther |first5=Duncan A. |last6=Bayat |first6=Ardeshir |journal=Plastic and Reconstructive Surgery |volume=125 |issue=5 |pages=1439–49 |pmid=20440163}} 146. ^{{cite journal |doi=10.1016/S1098-3015(10)75273-6 |title=Pss36 Development and Validation of the Patient-Reported Impact of Scars Measure (Prism) |year=2009 |last1=Wilburn |first1=J |last2=McKenna |first2=SP |last3=Brown |first3=B |last4=Solomon |first4=M |last5=McGrouther |first5=DA |last6=Bayat |first6=A |journal=Value in Health |volume=12 |issue=7 |pages=A459}} 147. ^{{cite journal |doi=10.1136/ard.2007.086009 |title=The development of the L-QoL: A quality-of-life instrument specific to systemic lupus erythematosus |year=2009 |last1=Doward |first1=L C |last2=McKenna |first2=S P |last3=Whalley |first3=D |last4=Tennant |first4=A |last5=Griffiths |first5=B |last6=Emery |first6=P |last7=Veale |first7=D J |journal=Annals of the Rheumatic Diseases |volume=68 |issue=2 |pages=196–200 |pmid=18385276}} 148. ^{{cite journal |doi=10.1093/rheumatology/kes370 |title=Comparison of the psychometric properties of health-related quality of life measures used in adults with systemic lupus erythematosus: A review of the literature |year=2012 |last1=Castelino |first1=M. |last2=Abbott |first2=J. |last3=McElhone |first3=K. |last4=Teh |first4=L.-S. |journal=Rheumatology |volume=52 |issue=4 |pages=684–96 |pmid=23264550}} 149. ^{{cite journal |doi=10.1002/acr.20636 |pmid=22588761 |title=Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire |year=2011 |last1=Yazdany |first1=Jinoos |journal=Arthritis Care & Research |volume=63 |issue=11 |pages=S413–S419|pmc=3437754 }} 1 : Medical lists |
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