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词条 Saving Eliza
释义

  1. References

Saving Eliza is the name for both a campaign, and associated three minute video, focused on saving the life of Eliza O'Neill. Eliza, then a 3-year-old living in Columbia, South Carolina, was diagnosed in 2013 with Sanfillipo syndrome – a terminal, rapidly degenerative disease in children.[1] The O'Neill family is working to raise the money needed to fund a clinical trial which could save the lives of Eliza and other children with the disease. Their efforts are part of a trend, by concerned private citizens, to raise money for research and drug trials regarding rare diseases, which might otherwise be under-addressed by pharmaceutical companies.[2] The O'Neills had found that researchers at Nationwide Children's Hospital, in Columbus, Ohio, had found a gene therapy that worked on mice, but they would need an additional $2.5 million to start clinical trials humans.[3]

The O'Neills established the non-profit Cure Sanfilippo Foundation to advocate for and fund research towards the cure for children.[4][5] The campaign was launched in October 2013.[6] After raising only $250,000 in the first half year, they expanded their efforts with the addition of the video in July 2014.[2][7]

The original Saving Eliza campaign was channeled through the GoFundMe web platform in October 2013.[6] By 2016, after the video went viral, the GoFundMe campaign surpassed its original goal of $2 million – a new record, at that time, as the most money ever raised for a single GoFundMe campaign.[8]

References

1. ^{{cite news |url=https://www.today.com/health/saving-eliza-campaign-edges-closer-goal-medical-trial-2D79749839 |title='Saving Eliza' campaign edges closer to goal for medical trial |first=Lisa |last=Flam |work=TODAY |publisher=NBC News |date=2014-06-17 |accessdate=2018-04-16}}
2. ^1 {{cite news |url=https://www.usnews.com/news/business/articles/2015/03/25/science-patients-driving-rare-disease-drug-research-surge |title=Science, industry economics, patients are boosting research on rare disease drugs _ and hope |first=Linda A. |last=Johnson |publisher=Associated Press |work=U.S. News & World Report |date=2015-03-25 |accessdate=2018-04-16}}
3. ^{{cite news |url=http://www.today.com/health/savingeliza-parents-use-viral-video-try-save-their-4-year-1D79551362 |title=#SavingEliza: Parents use viral video to try to save their 4-year-old's life |first=Linda |last=Carroll |work=TODAY |publisher=NBC News |date=2014-04-21 |accessdate=2018-04-16}}
4. ^{{cite web |url=http://www.CureSFF.org |title=Homepage |work=Cure Sanfilippo Foundation |accessdate=2018-04-16}}
5. ^{{cite news |url=http://www.foxnews.com/health/2014/11/07/saving-eliza-family-raising-money-for-sanfilippo-syndrome-drug-530k-away-from/ |title=‘Saving Eliza’: Family raising money for Sanfilippo Syndrome drug $530K away from goal |first=Melinda |last=Carstensen |work=Fox News |date=2014-11-07 |accessdate=2018-04-16}}
6. ^1 {{cite web |url=https://www.gofundme.com/ElizaONeill |title=Saving Eliza |work=GoFundMe |date=2013-10-02 |accessdate=2018-04-16}}
7. ^{{cite web |url=https://www.youtube.com/watch?v=CodSKvabcNA |title=Saving Eliza |work=YouTube |date=2014-07-06 |accessdate=2018-04-16}}
8. ^{{cite news |url=http://www.today.com/news/saving-eliza-campaign-gets-final-push-clinical-trial-1D80283822 |title=A birthday wish: 'Saving Eliza' gets final push for medical trial |first=Linda |last=Carroll |work=TODAY |publisher=NBC News |date=2016-10-14 |accessdate=2018-04-16}}

1 : Charity fundraisers
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