| 词条 | Scottish Huntington's Association |
| 释义 |
| name = Scottish Huntington's Association | logo = | type = | founded_date = 1989 | location = Paisley, with 9 regional offices | origins = | key_people = John Eden (chief executive);[1]Sarah Winckless (patron)[2] | area_served = Scotland | product = | focus = Care and support for families affected by huntington's disease | method = | revenue = | endowment = | num_volunteers = | num_employees = | num_members = | owner = | Non-profit_slogan = Empowering ordinary people to meet extraordinary challenges! | homepage = {{url|http://www.hdscotland.org}} | dissolved = | footnotes = }}Scottish Huntington's Association, also known as SHA, is a registered charity located in Scotland that supports families affected by the degenerative brain condition Huntington’s disease. Its headquarters is in Paisley.[3] History and operationThe charity was established some 25 years ago by families living with Huntington's disease and its chief executive is John Eden.[1] It works with the NHS and other agencies to co-ordinate a national plan for delivery of services to Huntington's patients and their families.[4] It is also a member of the Neurological Alliance of Scotland.[5] The charity funds nine specialist services across Scotland's regions to assist with access to nursing, welfare and other support.[6] It has been estimated that 16 in every 100,000 people in Scotland are living with the illness and the charity has reported an increase in referrals in recent years.[4][7] The charity also delivers youth services to young people who may be affected by the condition and works to raise awareness of the condition. In 2015, SHA and Stirling University received a prize at the Scottish Charity Awards for a joint project to design an accredited course to improve the awareness and knowledge of huntington's disease among health and social care staff in Scotland. Said to be the first of its type, the course is part of the Scottish Qualifications Framework.[1] The SHA is part of the UK HD Alliance.[8] It is also a member of the International Huntington Alliance.[9] Its patron is Olympic rower Sarah Winckless, who was diagnosed with Huntington's Disease several years ago.[10] See also
References1. ^1 2 {{cite news|last1=Cardwell|first1=Paul|title=Charity’s university partnership is top of the class at Scottish Charity Awards|url=http://thirdforcenews.org.uk/tfn-news/charitys-university-partnership-is-top-of-the-class-at-scottish-charity-awa|accessdate=13 June 2015|publisher=Third Force News|date=4 June 2015}} 2. ^{{cite news|last1=Adams|first1=Lisa|title=Former Olympic rower Sarah Winckless on why she is battling to raise money for the sufferers of Huntington's disease|url=http://www.dailyrecord.co.uk/news/real-life/former-olympic-rower-sarah-winckless-1069211|accessdate=13 June 2015|publisher=Daily Record and Sunday Mail|date=6 September 2010}} 3. ^{{cite web|title=Scottish Huntington's Association|url=http://www.frsb.org.uk/organisation/scottish-huntingtons-association/|website=frsb.org.uk|publisher=FundRaising Standards Board|accessdate=13 June 2015}} 4. ^1 {{cite news|title=Warning after '55% increase in Huntington's disease sufferers'|url=https://www.bbc.co.uk/news/uk-scotland-32800666|accessdate=13 June 2015|publisher=BBC|date=19 May 2015}} 5. ^{{cite web|title=Our members|url=http://www.scottishneurological.org.uk/content/members/|website=scottishneurological.org.uk|publisher=Scottish Neurological Alliance|accessdate=13 June 2015}} 6. ^{{cite web|title=Huntington's disease: local area groups|url=http://www.nhsinform.co.uk/support-services/topic/?topic=Huntington%27s+Disease&letter=H&mode=local|website=nhsinform.co.uk|publisher=NHS Inform|accessdate=13 June 2015}} 7. ^{{cite news|last1=Williams|first1=Martin|title=Victims of Huntington's disease need more help, warns charity|url=http://www.heraldscotland.com/news/health/victims-of-huntingtons-disease-need-more-help-warns-charity.20660900|accessdate=13 June 2015|publisher=Scottish Herald|date=1 April 2013}} 8. ^{{cite news|last=Lomas|first=Clare|title=Tony Hadley and Shane Richie named Huntington’s Disease Association’s new patrons|url=http://www.nursingtimes.net/whats-new-in-nursing/primary-care/tony-hadley-and-shane-richie-named-huntingtons-disease-associations-new-patrons/5002692.article|accessdate=10 December 2011|newspaper=Nursing Times|date=2009-06-11}} 9. ^{{cite web|title=List of member organisations|url=http://www.huntington-assoc.com/ihaadr.htm|publisher=IHA|accessdate=10 December 2011|deadurl=yes|archiveurl=https://web.archive.org/web/20120110050151/http://www.huntington-assoc.com/ihaadr.htm|archivedate=10 January 2012|df=}} 10. ^{{cite news|last1=English|first1=Tom|title=Katherine Grainger: 'It's not fair, it's not how life should be'|url=https://www.bbc.co.uk/sport/0/rowing/28298127|accessdate=13 June 2015|publisher=BBC|date=15 July 2014}} External links
3 : Huntington's disease|Health charities in the United Kingdom|United Kingdom charity stubs |
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