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词条 Amy Sequenzia
释义

  1. Disability rights and autism activism

  2. Notes

  3. References

  4. External links

{{Use mdy dates|date=May 2016}}

{{Autism rights movement}}

Amy Sequenzia is an American, non-speaking autistic, multiply-disabled activist and writer about disability rights, civil rights and human rights. She also has epilepsy, cerebral palsy, dyspraxia,[1] and insomnia.[1]

Sequenzia is a co-editor of Typed Words, Loud Voices, a book about typed communication.[2] She is a frequent contributor to the Autism Women's Network[3] and Ollibean.com.[4] She is also a board member of the Autistic Self Advocacy Network[5] and is on the board of directors at Florida Alliance for Assistive Services and Technology.[6] She also writes poetry.[7] She has presented in several conferences in both the United States and other countries, including the conference "Reclaiming our Bodies and Minds" at Ryerson University in Toronto.[3] Her work is featured in books about being Autistic and Disabled.{{efn|name=IFL}}

In her own words: "I type to communicate. I began typing when I was eight years old, but for many years I did not type much because of seizures that made me very tired all the time, and because of lack of support. Today I cannot imagine being silenced again."[3]

Disability rights and autism activism

Sequenzia is deeply involved with the Neurodiversity movement and has been outspoken about the rights and worth of disabled people. She criticizes the medical model of autism.[8][9] Sequenzia argues against attempts to cure autism, believing autism is an inseparable part of an autistic person's personhood.[10] However, she supports attempts to cure epilepsy.[11][12]

She supports all methods of communication a disabled person chooses to use and is a user of facilitated communication (FC), which she started when she was eight years old.[8][2][13] However, skeptic Steven Novella questions the validity of Sequenzia's writings under FC, claiming that they are unusually eloquent for a nonverbal autistic individual. Novella stated he would have to personally meet her to confirm. He also stated there is no plausible explanation for how she spontaneously learned to read and write at an advanced level when she was eight years old.[14]

Sequenzia uses identity-first language.{{efn|name=IFL|1=As explained by journalist Sydney Parker: "Sequenzia prefers to be identified as Autistic with a capital 'A' instead of as a person with autism. 'I use identity-first language...'."[9]}} She has written against the use of functioning labels as a person who is typically labeled "low-functioning".[8] Sequenzia states that labeling individuals by what they "cannot do" causes others to judge autistic people unfairly and with prejudice.[15]

Amy Sequenzia has criticized Temple Grandin for only focusing on and listening to high-functioning autistics, as opposed to low-functioning and non-speaking autistics. She has said that Grandin doesn't view those autistics as worthy of her attention.[16][17]

Notes

{{Notelist}}

References

1. ^{{Cite web|last=Sequenzia|first=Amy|date=October 28, 2013|title=My Uncooperative Body|work=Autism Women's Network|url=http://autismwomensnetwork.org/my-uncooperative-body/|accessdate=2015-10-04}}
2. ^{{Cite book|last1=Sequenzia|first1=Amy|first2=Grace|last2=Elizabeth J.|last3=Yergeau|first3=Melanie|year=2015|title=Typed Words, Loud Voices|publisher=Autonomous Press|isbn=978-0-9861835-2-2|location=}}
3. ^{{Cite web|title=Amy Sequenzia|work=Autism Women's Network|url=http://autismwomensnetwork.org/directory/amy-sequenzia/|access-date=2016-02-09}}
4. ^{{Cite web|title=About Amy Sequenzia|url=http://ollibean.com/author/amy-sequenzia/|website=Ollibean|access-date=2016-02-09}}
5. ^{{Cite web|title=Leadership|publisher=Autistic Self Advocacy Network|url=http://autisticadvocacy.org/home/about-asan/leadership/|accessdate=2015-12-26}}
6. ^{{Cite web|title=BoardMembers|publisher=Florida Alliance for Assistive Services and Technology|url=http://www.faast.org/node/2448|access-date=2016-02-09}}
7. ^{{Cite web|title=My Voice, My Life : A Poem by Amy Sequenzia|url=http://ollibean.com/2012/01/17/my-voice-my-life-a-poem-by-amy-sequenzia/|website=Ollibean|access-date=2016-02-09|first=Amy|last=Sequenzia}}
8. ^{{Cite web|last=Zurcher|first=Ariane|date=November 9, 2012|title=An Interview With Amy Sequenzia, a Non-Speaking Autistic Writer and poet|work=The Huffington Post|url=http://www.huffingtonpost.com/ariane-zurcher/autism_b_1871276.html|accessdate=2015-08-28}}
9. ^{{Cite web|last=Parker|first=Sydney|date=March 20, 2015|title=Autism: does ABA therapy open society's doors to children, or impose conformity?|work=The Guardian|url=https://www.theguardian.com/society/2015/mar/20/autism-does-aba-therapy-open-societys-doors-to-children-or-impose-conformity|accessdate=2015-09-09}}
10. ^{{Cite news|url=http://america.aljazeera.com/opinions/2015/10/fixing-the-charity-that-wants-to-fix-autism.html|title=Fix the Charity That Wants To 'Fix' Autism|last=Perry|first=David M.|date=October 9, 2015|work=Al Jazeera America|access-date=March 2, 2016|via=}}
11. ^{{Cite web|last=Sequenzia|first=Amy|date=April 17, 2015|title=Celebrating My Life|website=Ollibean|url=http://ollibean.com/2015/04/17/celebrating-my-life/|accessdate=2015-09-20}}
12. ^{{Cite web|last=Sequenzia|first=Amy|date=March 28, 2013|title=Pain in My Brain|website=Ollibean|url=http://ollibean.com/2013/03/28/pain-brain/|accessdate=2015-09-20}}
13. ^{{Cite web|last=Des Roches Rosa|first=Shannon|date=November 7, 2012|title=Interview: Amy Sequenzia on Facilitated Communication|website=Thinking Person's Guide to Autism|url=http://www.thinkingautismguide.com/2012/11/interview-amy-sequenzia-on-facilitated.html|accessdate=2015-09-20}}
14. ^{{cite web |last1=Novella |first1=Steven |title=Facilitated Communication Persists Despite Scientific Criticism |url=https://theness.com/neurologicablog/index.php/facilitated-communication-persists-despite-scientific-criticism/ |website=NeuroLogica Blog |accessdate=2 March 2019 |date=8 November 2012}}
15. ^{{Cite book|url=https://books.google.com/books?id=3ZSFCgAAQBAJ&lpg=PA30&dq=%22Amy%20Sequenzia%22&pg=PR5#v=onepage&q=%22Amy%20Sequenzia%22&f=false|title=The Oxford Handbook of Music and Disability Studies|last=Bakan|first=Michael B.|publisher=Oxford University Press|year=2016|isbn=9780199331451|editor-last=Howe|editor-first=Blake|location=|pages=29–30|chapter=Toward an Ethnographic Model of Disability in the Ethnomusicology of Autism|editor-last2=Jensen-Moulton|editor-first2=Stephanie|editor-last3=Lerner|editor-first3=Neil|editor-last4=Straus|editor-first4=Joseph}}
16. ^{{cite web|last1=Sequenzia|first1=Amy|title=When Autistics Grade Other Autistics|url=https://ollibean.com/autistics-grade-autistics/|website=Ollibean|accessdate=1 July 2017|date=19 January 2013}}
17. ^{{cite web|last1=Sequenzia|first1=Amy|title=Amy Sequenzia|url=https://www.facebook.com/amy.sequenzia/posts/10155325759358701|website=www.facebook.com|accessdate=1 July 2017|language=en}}

External links

  • Non-Speaking Autistic Speaking
  • Interview
{{authority control}}{{DEFAULTSORT:Sequenzia, Amy}}

17 : 21st-century American poets|21st-century American women writers|American activists|American bloggers|American people with disabilities|American women activists|American women poets|Autism activists|Disability rights activists from the United States|Living people|People on the autism spectrum|People with cerebral palsy|People with epilepsy|People with insomnia|American women bloggers|Year of birth missing (living people)|Writers with disabilities

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