| 词条 | ALS Association |
| 释义 |
| logo = ALS Association logo.svg | motto = Create a world without ALS | type = Non-profit | leader_title = President and CEO | leader_name = Calaneet Balas | leader_title2 = Chairman | leader_name2 = Stephen Winthrop | key_people = | budget = | footnotes = | name = ALS Association | founded_date = {{start date and age|1985}} | founder = | location = Washington, D.C., U.S. | area_served = United States | focus = advocacy, patient services | revenue = $29.7 million (2018)[1] | endowment = | homepage = alsa.org | dissolved = | abbreviation = ALSA | founding_location = | region = United States }} The ALS Association is an American nonprofit organization that raises money for research and patient services, promotes awareness about and advocates in state and federal government on issues related to amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's disease. The ALS Association is broken up into distinct chapters each servicing a particular geographic area of the United States all working under the umbrella of a national charter and administrator. ResearchThe ALS Association has committed around $67 million for ALS research since it was founded in 1985.[2] ALSA is a research partner for Answer ALS (started by Steve Gleason),[3] Target ALS (founded by Dan Doctoroff),[4] and ALS ONE.[5] The organization also provides funding for the ALS Research Forum, a project of Prize4Life[6], which has since merged with the ALS Association. Awareness and FundraisingThe association's signature fundraising event each year is the "Walk to Defeat ALS". This event is held each fall through spring by local chapters of the association in cities across the United States.[7] Since its inception in 2000, this event has raised more than $220 million.[8] ControversiesFollowing the 2014 Ice Bucket Challenge, the ALS Association attempted to trademark the term "ice bucket challenge". Following backlash, the association withdrew the trademark application.[9] In August 2017, Phi Delta Theta, the fraternity of which Lou Gehrig was a member of, terminated its partnership with ALSA citing a lack of changes and improvement in organizational leadership, and elected to proceed with creating their own ALS-related charity.[10][11][12] In early 2018, a patient group called the "Terminally Persistent" coalition criticized the ALS Association for not spending the $115 million earned from the Ice Bucket Challenge more readily on research. Additionally, the group complained that the organization was not funding Phase III clinical trials for Brainstorm Cell Therapeutics, a pharmaceutical company researching treatments for ALS.[13] In a blog post, the Association said that they don't and never have funded Phase III trials,[14] though, according to their website, they did in 2015 with Cytokinetics.[15] References1. ^{{cite web |url=http://www.alsa.org/assets/pdfs/fy18-fin-st.pdf|title=ALS Association Financial Statement |author= |publisher= alsa.org | year=2018 |accessdate=}} 2. ^{{Cite web|url=http://www.alsa.org/news/media/quick-facts.html|title=Quick Facts About ALS & The ALS Association|website=ALSA.org|language=en|access-date=2018-02-16}} 3. ^{{Cite news|url=http://answerals.org/partners/|title=Partners - Answer ALS Foundation|work=Answer ALS Foundation|access-date=2018-02-16|language=en-US}} 4. ^{{Cite web|url=http://www.targetals.org/about-us/our_partners.html|title=Target ALS {{!}} Our Partners|website=www.targetals.org|language=en|access-date=2018-02-16}} 5. ^{{Cite web|url=https://www.prnewswire.com/news-releases/the-als-one-massachusetts-als-partnership-map-will-accelerate-treatment-and-care-in-als-300362229.html#continue-jump|title=The ALS ONE Massachusetts ALS Partnership (MAP) Will Accelerate Treatment and Care in ALS|last=Association|first=The ALS|website=www.prnewswire.com|language=en|access-date=2018-02-16}} 6. ^{{Cite web|url=http://www.alsresearchforum.org/about-us/|title=About Us|last=|first=|date=|website=ALS Research Forum|language=en-US|access-date=2018-02-16}} 7. ^{{cite web|title=Quick Facts About ALS & The ALS Association |url=http://www.alsa.org/news/media/quick-facts.html |year=2012 |accessdate=2014-08-24}} 8. ^{{cite web|title=Walk to Defeat ALS|url=http://web.alsa.org/site/PageServer?pagename=WLK_Landing#.U_paK_mwJ9V |year=2014 |accessdate=2014-08-24}} 9. ^{{Cite news|url = https://www.washingtonpost.com/news/post-nation/wp/2014/08/28/can-the-als-association-trademark-the-ice-bucket-challenge-its-going-to-try/|title = ALS Association withdraws controversial applications to trademark ‘ice bucket challenge’|last = Ohlheiser|first = Abby|date = August 30, 2014|work =|access-date =|via =}} 10. ^{{Cite web|url=https://www.phideltatheta.org/2017/08/phi-delta-theta-to-announce-new-strategic-direction-in-the-fight-against-als/|title=Phi Delta Theta To Announce New Strategic Direction In The Fight Against ALS – Phi Delta Theta Fraternity|website=www.phideltatheta.org|language=en-US|access-date=2018-02-16}} 11. ^{{Cite web|url=https://www.phideltatheta.org/2017/11/phi-delta-theta-fraternity-launches-the-livelikelou-foundation-to-strengthen-its-impact-on-the-fight-against-lou-gehrigs-disease/|title=Phi Delta Theta Fraternity Launches The LiveLikeLou Foundation To Strengthen Impact On The Fight Against Lou Gehrig’s Disease – Phi Delta Theta Fraternity|website=www.phideltatheta.org|language=en-US|access-date=2018-02-16}} 12. ^{{Cite web|url=https://drive.google.com/file/d/0B0yxxVCJLk5la21oeXg2dXg3R0k/view|title=PTD letter to ALSA|last=Briggs|first=Robert|date=2017-08-09|website=|access-date=}} 13. ^{{Cite news|url=https://www.marketwatch.com/story/guid/C10C2D22-101B-11E8-B029-A959A5F50C0D|title=ALS patient group unhappy with how $115 million raised by the Ice Bucket Challenge is being spent|last=Court|first=Emma|work=MarketWatch|access-date=2018-02-16|language=en-US}} 14. ^{{Cite news|url=https://alsadotorg.wordpress.com/2018/02/07/an-open-letter-to-the-als-community/|title=An Open Letter to the ALS Community|date=2018-02-07|work=The Official Blog of The ALS Association|access-date=2018-02-16|language=en-US}} 15. ^{{Cite news|url=https://www.marketwatch.com/story/cytokinetics-and-the-als-association-announce-partnership-to-advance-the-fight-against-als-2015-06-04|title=Cytokinetics And The ALS Association Announce Partnership To Advance The Fight Against ALS|work=MarketWatch|access-date=2018-02-16|language=en-US}} External links
6 : Medical and health organizations based in Washington, D.C.|Neurology organizations|Organizations based in Washington, D.C.|Patient advocacy|Organizations established in 1985|Amyotrophic lateral sclerosis |
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