词条 | Children's hospice |
释义 |
}} A children's hospice is a hospice specifically designed to help children and young people who are not expected to reach adulthood with the emotional and physical challenges they face, and also to provide respite care for their families. ServicesA typical children's hospice service offers:
Children's hospice services work with families from all faiths, cultures and ethnic backgrounds and respect the importance of religious customs and cultural needs that are essential to the daily lives of each family. Many have a chaplain who is familiar with a variety of faiths and customs. Each service is typically an independent charity which relies on public support to continue their work.{{citation needed|date=August 2017}} Children's hospice services are dedicated to improving the quality of life of children and young people who are not expected to live to reach adulthood and their families.[1] They provide flexible, practical and free support at home and in the hospice to the entire family, often over many years and at any stage of the child’s or young person’s illness. This includes short breaks and daytime activities enabling families to get a rest; help with the control of pain or other distressing symptoms; and support for family members, including brothers and sisters. When the end of a child’s life approaches, children’s hospice services are there to provide end-of-life care and bereavement support for as long as it’s needed, helping families and friends approach death with dignity and peace. United Kingdom children's hospicesHelen House in Oxfordshire was the world's first children's hospice.[2] It opened in November 1982. Helen House sprang from a friendship between Sister Frances Dominica and the parents of a seriously ill little girl called Helen, who lived at home with her family but required 24-hour care.[3]The first children's hospice in Scotland Rachel House, run by Children's Hospice Association Scotland opened in March 1996.[4] There are now over 40 operational children's hospice services open across the UK.[3] Children's hospice services in England receive an average of 5% government funding and rely heavily on public donations. United States children's hospices{{See also|Hospice care in the United States}}The children's hospice movement is still in a relatively early stage in the United States, where many of the functions of a children's hospice are provided by children's hospitals. In 1983, of the 1,400 hospices in the United States, only four were able to accept children. Key developments since then include:
Through the efforts of CHI, most of the over 3,000 hospices in the U.S. will now consider accepting children. Also, approximately 450 programs have children-specific hospice, palliative, or home care services.[6] There are a few independent children's hospice homes working to get started, including:
Canadian children's hospices
Australian children's hospices
South African children's hospices
Other nations' children's hospices
See also
References1. ^{{cite web|url=http://www.childhospice.org.uk|title=Children's Charities - Children Hospices - Together for Short Lives|website=www.childhospice.org.uk}} 2. ^{{cite web|url=http://www.helenanddouglas.org.uk/|title=Helen & Douglas House - the World's first children's hospice providing hospice care for children and young adults|website=www.helenanddouglas.org.uk|accessdate=19 March 2014}} 3. ^1 {{cite web | url= http://www.helenanddouglas.org.uk/extra16.html | title= History | work= Helen & Douglas House | accessdate= 2007-07-08 }} 4. ^{{cite web|url=http://www.dailyrecord.co.uk/lifestyle/inspirational-scottish-chas-hospice-rachel-7598872|last1=McIver|first1=Brian|title=Inspirational Scottish CHAS hospice Rachel House celebrates its 20th birthday.|website=www.dailyrecord.co.uk|access-date=August 20, 2017}} 5. ^{{cite web | title= Secretary Thompson receives the "Mattie Stepanek Champion Award" from Children's Hospice International for his dedication to helping children in need | url= http://www.chionline.org/events/resources/101305%20CHI%20Thompson%20Award%20Release.pdf | format= pdf | date= October 13, 2005 | work= Children's Hospice International | accessdate= 2007-07-08 | deadurl= yes | archiveurl= https://web.archive.org/web/20070928115547/http://www.chionline.org/events/resources/101305%20CHI%20Thompson%20Award%20Release.pdf | archivedate= September 28, 2007 | df= }} 6. ^{{cite web | url= http://www.chionline.org/whoweare/ | title= Who We Are | work= Children's Hospice International | accessdate= 2007-07-08 | deadurl= yes | archiveurl= https://web.archive.org/web/20070724043109/http://www.chionline.org/whoweare/ | archivedate= 2007-07-24 | df= }} 7. ^{{cite web|title=George Mark Children's House | url= http://www.georgemark.org/}} 8. ^{{cite web |title=Ryan House| url= http://www.ryanhouse.org/}} 9. ^http://angelunaware.wpengine.com/ 10. ^{{Cite web|url=http://angelunaware.wpengine.com/about-us/|title=About Us – Angel Unaware Pediatric Hospice|website=angelunaware.wpengine.com|access-date=2016-04-26}} 11. ^{{cite web |title=Sarah House| url= http://www.sarahhousecincy.org}} 12. ^{{cite web |title=Connor's House - About Us| url= http://www.connorshouse.org/about-us/}} 13. ^<{{cite web |title=Ladybug House Timeline| url= http://www.ladybughouse.org/timeline/}} 14. ^{{Cite web|url=http://www.vsk.org.au/looking-back-on-30-years/|title=Very Special Kids celebrates 30 years|last=|first=|date=|website=www.vsk.org.au|publisher=|access-date=}} 15. ^{{Cite web|url=https://www.schn.health.nsw.gov.au/about-us/about-bear-cottage|title=About Bear Cottage|last=|first=|date=|website=|publisher=|access-date=}} 16. ^{{Cite news|url=http://www.ehospice.com/internationalchildrens/ArticleView/tabid/10670/ArticleId/20740/language/en-GB/View.aspx|title=That house that Queensland built - official opening of Hummingbird House|last=|first=|date=|work=|access-date=|via=eHospice}} 17. ^{{cite web|url=http://iris-house.org/|title=Home|date=14 September 2011|publisher=}} 18. ^{{cite web|url=http://www.dagen.se/dagen/article.aspx?id%3D224722 |title=Archived copy |accessdate=2010-11-25 |deadurl=yes |archiveurl=https://web.archive.org/web/20110716111622/http://www.dagen.se/dagen/article.aspx?id=224722 |archivedate=2011-07-16 |df= }} 19. ^{{cite web|url=http://www.irishtimes.com/newspaper/ireland/2011/0928/1224304857029.html|title=State's first hospice for children 'just a godsend'|publisher=}} 20. ^{{cite web|url=http://www.4ni.co.uk/northern_ireland_news.asp?id%3D12432 |title=Archived copy |accessdate=2013-09-03 |deadurl=yes |archiveurl=https://web.archive.org/web/20131002071316/http://www.4ni.co.uk/northern_ireland_news.asp?id=12432 |archivedate=2013-10-02 |df= }} 21. ^{{cite web |url=http://www.szememfenye.hu/rovat/dori-haz |title=Archived copy |accessdate=2013-06-27 |deadurl=yes |archiveurl=https://web.archive.org/web/20130917221107/http://www.szememfenye.hu/rovat/dori-haz |archivedate=2013-09-17 |df= }} 22. ^{{cite web|url=http://www.tabitha.hu/|title=Tábitha - Gyermekhospice – hogy mindig legyen segítség|website=www.tabitha.hu}} 23. ^{{cite web|url=http://www.sterntalerhof.at/en/sterntalerhof/about-us/|title=About us - Sterntalerhof|website=www.sterntalerhof.at}} 24. ^{{cite web|url=http://www.hospicjum-podkarpackie.pl/|title=Fundacja Podkarpackie Hospicjum dla dzieci - Komu przekazać 1% podatku?|website=www.hospicjum-podkarpackie.pl}} 25. ^{{cite web|url=http://pomorskiehd.pl|title=Fundacja Pomorskie Hospicjum dla dzieci|website=www.pomorskiehd.pl}} 2 : Pediatrics|Hospice |
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