| 词条 | Motor Neurone Disease Association |
| 释义 |
| name = Motor Neurone Disease Association | image = MND Assoc Logo.jpg | image_size = 220px | type = Charitable organisation | founded_date = {{Start date|1979|10|06|df=y}} | tax_id = | registration_id = England: 294354 | founder = | location = David Niven House, 10–15 Notre Dame Mews, Northampton, NN1 42BG | coordinates = | origins = | key_people = | area_served = England, Wales and Northern Ireland | product = | mission = A World Free of MND | focus = Motor Neurone Disease, health policy | method = | revenue = | endowment = | num_volunteers = 7,000 | num_employees = 170 | num_members = 9,000 | subsid = | owner = | non-profit_slogan = | former name = | homepage = {{URL|www.mndassociation.org}} | dissolved = | footnotes = }} The Motor Neurone Disease Association (MND Association) is a British charity, operating in England, Wales and Northern Ireland, established in 1979 by a group of volunteers to coordinate care, support, and research for people affected by amyotrophic lateral sclerosis, which is a form of motor neurone disease (MND) (also known as Charcot disease, ALS or, in the United States, Lou Gehrig's disease). The Association's chief executive is Sally Light and its president is neuroscientist Sir Colin Blakemore. The Royal Patron of the association is HRH The Princess Royal. The patrons of the Association are former English cricketer and current ICC official Chris Broad; entrepreneur and philanthropist Joel Cadbury, actor Benedict Cumberbatch CBE; palliative medicine consultant and parliamentarian Baroness Finlay of Llandaff; neuroscientist, broadcaster, author and parliamentarian Baroness Greenfield CBE; TV presenter Charlotte Hawkins; entrepreneur and philanthropist Jamie Niven; former land-speed record holder and entrepreneur Richard Noble; OBE actor Eddie Redmayne and OBE and TV/radio presenter Jeremy Vine. The Association had previously been supported by the neurologist and four-minute-mile record breaker Sir Roger Bannister and cosmologist and theoretical physicist Professor Stephen Hawking CH CBE (who had lived with MND for many years) until their deaths in March 2018. The ambassadors of the MND Association are actor Joss Ackland OBE; actress Gina Bellman; actor Taron Egerton; comedian and TV presenter Olivia Lee and TV presenter Natalie Pinkham. The association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by Motor Neurone Disease. It is a membership organisation with over 9,000 members forming a national and local network that provides information and support alongside fighting for improved services. It has over 7,000 active volunteers in England, Wales and Northern Ireland and around 170 paid staff, whose specialist skills and knowledge are dedicated to improving the lives of people affected by MND. Further information can be found on their website as well as further key facts and information Vision[1]A world free from MND Mission[2]Improve care and support for people with MND, their families and carers. Fund and promote research that leads to new understanding and treatments, and brings us closer to a cure for MND. Campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society. ActivitiesResearchThe Motor Neurone Disease Association funds and promotes research to understand what causes MND, how to diagnose it and, most importantly, how to effectively treat it so that it no longer devastates lives. It does this by:
The MND Association organises the International Symposium on ALS/MND, an annual event which brings together leading international researchers and health and social care professionals to present and debate innovations in their fields. The MND Association funds research that includes animal testing.[4][5] Care and information
Fundraising
Awareness and campaignsThe association has a campaigns network that helps shape a better future for people with neurological conditions such as MND. It does this by:
A team from Hampshire Scout Expeditions are bidding to reach the South Pole in 2018, being the first Scout group to ski from the coast of Antarctica to the South Pole and back again, a total distance of 1400miles. The team will raise awareness of MNDA during their expedition and training. External links
References1. ^{{Cite web|url=http://www.mndassociation.org/about-us/our-vision-mission-and-values/|title=MND Association website|last=|first=|date=|website=|publisher=|access-date=}} {{Amyotrophic lateral sclerosis}}2. ^{{Cite web|url=http://www.mndassociation.org/about-us/our-vision-mission-and-values/|title=MND Association Website|last=|first=|date=|website=|publisher=|access-date=}} 3. ^{{cite web|url=http://www.bbc.co.uk/pressoffice/pressreleases/stories/2004/04_april/02/hawking_cumberbatch.shtml |title=Press Office - Hawking Benedict Cumberbatch |publisher=BBC.co.uk |date=2014-09-24 |accessdate=2015-05-20}} 4. ^{{cite web|url=http://www.mndassociation.org/research/Our+research/Research+we+fund/Models+of+MND |title=Models of MND |publisher=MNDassociation.org |date=2015-05-16 |accessdate=2015-05-20}} 5. ^{{cite web|url=http://www.animalaid.org.uk/h/n/CAMPAIGNS/experiments/ALL/281/ |title=Health Charities and Animal Testing |publisher=Animalaid.org.uk |date= |accessdate=2015-05-20}} 6. ^{{Cite web|url=http://www.mndassociation.org/wp-content/uploads/MND-Association-Key-Messages-Jan-2016.pdf|title=Key Messages|last=|first=|date=|website=|publisher=|access-date=}} 7 : 1979 establishments in the United Kingdom|Health charities in the United Kingdom|Motor neuron diseases|Organisations based in Northamptonshire|Science and technology in Northamptonshire|Scientific organizations established in 1979|Amyotrophic lateral sclerosis |
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