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词条 Sue Rubin
释义

  1. References

  2. External links

{{Infobox person
| name = Susan M. Rubin
| image = File:Sue_Rubin_2011.jpg
| alt =
| caption =
| birth_name = Susan Marjorie Rubin
| birth_date = {{birth date and age|1978|5|25}}
| birth_place = Whittier, California
| death_date =
| death_place =
| nationality = American
| other_names =
| occupation = Disability Advocate, Consultant
| years_active =
| known_for = Autism activism
| notable_works = Autism is a World
}}{{Autism rights movement|criticism}}Susan Marjorie "Sue" Rubin (born May 25, 1978) is a functionally non-verbal person with autism who was the subject of the Oscar-nominated documentary Autism Is A World. This documentary shows that Rubin learnt to communicate via the technique of facilitated communication, which allows some people with autism to learn to type messages using a keyboard with someone else's assistance. The documentary shows Rubin progressing to typing without support.[1][2] Some studies found that facilitated communication was not actually effective and that the resulting messages were essentially written by the facilitators themselves, often unconsciously.[3][4][5][6][7][8] Organisations such as American Psychological Association, the American Academy of Child and Adolescent Psychiatry, and the Association for Behavior Analysis have stated that facilitated communication is not a valid technique.[9][8]

With use of facilitated communication, Rubin attended Whittier College in Whittier, California, graduating with a bachelor's degree in Latin American History in May 2013.[10][11]

From messages derived from facilitated communication, it is purported that Rubin considers herself to be a low-functioning autistic person, and that she has stated that there exists a rift in the autistic community between high functioning autistics who often resist efforts to find a cure for autism, and low-functioning autistics like herself who strongly support a cure: "High-functioning people speak and low-functioning people don't. ... Low-functioning people are just trying to get through the day without hurting, tapping, flailing, biting, screaming, etc. The thought of a gold pot of a potion with a cure really would be wonderful."[12]

Rubin was a contributing author featured in Autism and The Myth of The Person Alone, a collection edited by Douglas Biklen, a proponent of facilitated communication. The book featured functionally non-verbal published authors with autism including Lucy Blackman, Tito Mukhopadhyay, artist Larry Bissonette, Alberto Frugone, Jamie Burke and award winning writer Richard Attfield. In the introduction to her chapter, Biklen writes that Sue has "become a leading disability rights advocate and keynote speaker at many disability conferences".[13]

References

1. ^{{cite news|url=https://www.washingtonpost.com/wp-dyn/articles/A42582-2005Feb21.html|title=Oscar Nominee: Documentary or Fiction?|date=22 February 2005|agency=The Washington Post|last1=Mann|first1=Lisa|accessdate=14 March 2016}}
2. ^{{cite web|url=https://www.nytimes.com/movies/movie/318365/Autism-is-a-World/details|title=Autism is a World|website=The New York Times|accessdate=14 March 2016}}
3. ^{{cite web|url=http://www.sciencedaily.com/releases/2015/02/150226154644.htm|title=Why debunked autism treatment fads persist|website=Science Daily|publisher=Emory University|display-authors=etal|last1=Lilienfeld|accessdate=10 November 2015}}
4. ^{{cite web|url=http://dailyorange.com/2016/04/syracuse-universitys-reinforcement-of-facilitated-communication-inexcusable-concerning/|title=Syracuse University's reinforcement of facilitated communication inexcusable, concerning|date=2016-04-12|website=The Daily Orange|publisher=Syracuse University|archive-url=|archive-date=|dead-url=|last1=Editorial Board|accessdate=13 April 2016}}
5. ^{{cite journal|date=13 July 2012|title=The moral obligation to be empirical: Comments on Boynton's 'Facilitated Communication - what harm it can do: Confessions of a former facilitator'|journal=Evidence-Based Communication Assessment and Intervention|volume=6|issue=1|pages=36–57|doi=10.1080/17489539.2012.704738|last1=Todd|first1=James T.}}
6. ^{{Cite journal|last=Hall|first=Genae A.|date=1993|title=Facilitator Control as Automatic Behavior: A Verbal Behavior Analysis|journal=The Analysis of Verbal Behavior|volume=11|pages=89–97|pmc=2748555|pmid=22477083|doi=10.1007/BF03392890}}
7. ^{{cite journal|last2=Mulick|first2=James A.|last3=Schwartz|first3=Allen A.|date=September 1995|title=A History of Facilitated Communication: Science, Pseudoscience, and Antiscience: Science Working Group on Facilitated Communication|journal=American Psychologist|volume=50|issue=9|pages=750–765|doi=10.1037/0003-066x.50.9.750|last1=Jacobson|first1=John W.}}
8. ^Facilitated Communication: Sifting the Psychological Wheat from the Chaff. American Psychological Association. June 13, 2016.
9. ^{{cite journal|date=Spring–Summer 2005|title=Pseudoscience in Autism Treatment: Are the News and Entertainment Media Helping or Hurting?|url=https://www.srmhp.org/0401/media-watch.html|journal=Scientific Review of Mental Health Practice|volume=4|issue=1|pages=58–60|via=|last1=Riggott|first1=Julie|accessdate=}}
10. ^{{cite web|last1=Rubin|first1=Susan|title=Susan Rubin|url=http://soe.syr.edu/centers_institutes/institute_communication_inclusion/AAC_Users/Rubin.aspx|website=Syracuse University School of Education|accessdate=14 March 2016}}
11. ^{{Cite news|url=http://www.slate.com/articles/health_and_science/medical_examiner/2013/01/autism_neurodiversity_does_facilitated_communication_work_and_who_speaks.html|title=Is the Neurodiversity Movement Misrepresenting Autism?|last=Lutz|first=Amy S. F.|date=January 16, 2013|work=Slate|access-date=June 5, 2017|archive-url=|archive-date=|dead-url=}}
12. ^Acceptance Versus Cure {{Webarchive|url=https://web.archive.org/web/20130926031713/http://www-cgi.cnn.com/CNN/Programs/presents/shows/autism.world/notebooks/sue/notebook.html |date=2013-09-26 }} CNN.com
13. ^{{cite book |last1=Biklen |first1=Douglas |last2=Bissonnette |first2=Larry |last3=Blackman |first3=Lucy |title=Autism and the Myth of the Person Alone |date=2005 |publisher=NYU Press |isbn=9780814799277 |page=145 |url=https://books.google.com/books?id=_hexpszQACIC |accessdate=6 March 2019 |language=en}}

External links

  • {{IMDb title|id=0443434|title=Autism Is A World}}
  • Sue Rubin's Personal Webpage
  • Facilitated communication advocated in CNN-funded documentary, BAAM criticism
{{Authority control}}{{DEFAULTSORT:Rubin, Sue}}{{autism-stub}}

9 : Living people|American people with disabilities|People on the autism spectrum|Whittier College alumni|Whittier College people|Autism activists|Disability rights activists from the United States|American women writers|1978 births

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