| 词条 | Patients Association |
| 释义 |
The Patients Association is an advocacy group operating in the UK that aims to improve patients' experience of healthcare.[1] Established in 1963, it became a registered charity in 1991.[2] ActivitiesThe Patients Association's current projects include[3]:
The organisation runs a national helpline "providing specialist information, advice and signposting to help people navigate the often complex world of health and social care."[4] It cannot provide medical or legal advice. FundingThe Patients Association's income for 2016 was £254,862 and it held reserves of £471,604 at the end of the year.[5] It receives most of its funding from individual and corporate membership (76% in 2016[5]) which the organisation says "ensures that we do not have to receive core funding from Government; therefore, we can represent the interests of patients alone."[6] It receives a smaller amount of funding through donations from patients, the public, and grant giving charitable organisations. President and Vice-PresidentsSir Robert Francis, QC is the President of the Patients Association.[7] The Vice-Presidents comprise:
History{{refimprove section|date=October 2017}}The Patients Association was set up in 1963 by Helen Hodgson, "a part-time teacher who was motivated by recent events concerning the drug Thalidomide, and reports of patients receiving the wrong treatment and tests being carried out on patients without their informed consent."[8] Over the years the association has monitored trends in patient satisfaction and opinion; promoted the voice of the patient in NHS and private healthcare; represented the patient's viewpoint to official bodies such as the Department of Health, medical and nursing colleges and professional organisations such as the British Medical Association and General Medical Council; provided an advisory service for patients and their relatives; offered patients the opportunity to share their experiences of the whole range of healthcare services; campaigned on issues such as hospital conditions, waiting lists and visiting hours, standards of care, patient consent, codes of practice regarding use of patients in teaching, subject access to medical records, and confidentiality.{{citation needed|date=October 2017}} Dame Elizabeth Ackroyd was the President from 1971 to 1978, and from 1978 she was appointed as the Chair. She was considered the heart and soul of the association in terms of representation on committees and working parties, engagement with the media, attending events, and (with a small industrious staff) the day-to-day business and running of the organisation. A source of formidable energy and enthusiasm, as well as running the association, Dame Elizabeth held prominent roles in the National Consumer Council established in 1963, the Consumers' Association and numerous other voluntary organisations.{{citation needed|date=October 2017}} Katherine Murphy was the Director and Chief Executive Officer from 2007 to 2017. During this ten year period, she led and maintained the Patients Association as market leader in the campaigning and lobbying on the subject of patient and carer rights. She successfully raised the profile, expectations and goal of the Patients Association. She developed and grew the organisation, both in terms of infrastructure and funding, including expanding the much-needed help and advice line. Under her leadership, the Patients Association established successful relationships with regulators and other bodies and set up Patients Assocation representation at Party conferences. Katherine Murphy became their Media spokesperson at a national level through radio and television interviews or press comments, representing and defending PA's policy and strategy and called for reform of the NHS complaints system. Reports published over that period included: "Listen to Patients - Speak up for Change 2010"; "We Have Been listening - Have You Been Learning?" 2011; "Handling Complaints with a Compassionate Human Touch, 2014": "The People's Ombudsman - How it Failed Patients, 2014"; "Why the NHS should listen and be human - Themes Report 2015", "Parliamentary Health Service Ombudsman - Labrynth of Bureaucracy 2015." Katherine Murphy stepped down in March 2017 http://www.nationalhealthexecutive.com/News/murphy-steps-down-as-patients-association-ceo-/163990 References1. ^{{cite web |url=https://www.patients-association.org.uk/about/our-vision/ |title=Our vision |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} 2. ^{{cite web |url=http://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityWithoutPartB.aspx?RegisteredCharityNumber=1006733 |title=1006733 - The Patients Association |author= |date= |website= |publisher=Charity Commission for England and Wales |access-date=24 October 2017 |quote=}} 3. ^{{cite web |url=https://www.patients-association.org.uk/projects/ |title=Projects |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} 4. ^{{cite web |url=https://www.patients-association.org.uk/helpline/ |title=Helpline |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} 5. ^1 {{cite web |url=http://apps.charitycommission.gov.uk/Accounts/Ends33/0001006733_AC_20161231_E_C.pdf |title=The Patients Association – Annual report and unaudited financial statements for the year ended 31 December 2016 |author= |date= |website=Charity Commission for England and Wales |publisher=Patients Association |access-date=24 October 2017 |quote=}} 6. ^{{cite web |url=https://www.patients-association.org.uk/get-involved/corporate-members/ |title=Helpline |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} 7. ^{{cite web |url=https://www.patients-association.org.uk/about/presidents/ |title=President and Vice-Presidents |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} 8. ^{{cite web |url=https://www.patients-association.org.uk/about/ |title=About us |author= |date= |website= |publisher=Patients Association |access-date=24 October 2017 |quote=}} External links
2 : Health charities in England|Charities based in London |
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