“Asthma Life Impact Scale”的意思、由来-开放百科全书

The Asthma Life Impact Scale (ALIS) measure is a disease specific patient reported outcome questionnaire which assesses the impact that asthma has on a patient’s quality of life.^[1]

The questionnaire has 22 items,^[1] which goes beyond earlier focus on the symptoms, functioning and environmental triggers of asthma and includes emotional issues.^[2]

Development

The ALIS was developed simultaneously in the UK and the US via interviews and focus groups.^[3] It was developed and published in 2010 by Galen Research and funded by Novartis AG.^[1] It was the first asthma specific quality of life measure that was developed using Item Response Theory.^[4]

Items that were featured on the ALIS include: “asthma restricts my social activities”; “asthma affect my close relationships”, “my illness controls me” and “my asthma affects my interest in sex”.^[5]

International use

Currently, the ALIS has been translated into 16 different languages,^[6] including Russian and Italian.^[4]

References

1. ^¹²{{cite journal|last=Meads|first=David M.|author2=McKenna, Stephen P.|author3=Doward, Lynda C.|author4=Pokrzywinski, Robin|author5=Revicki, Dennis|author6=Hunter, Cameron|author7= Glendenning, G. Alastair|title=Development and validation of the Asthma Life Impact Scale (ALIS)|journal=Respiratory Medicine|date=May 2010|volume=104|issue=5|pages=633–643|doi=10.1016/j.rmed.2009.11.023|url=http://www.sciencedirect.com/science/article/pii/S0954611109003874|accessdate=14 October 2013|pmid=20053543}}
2. ^{{cite journal|last=Shen |first=Joannie |author2=Johnston, Michael |author3=Hays, Ron D. |title=Asthma Outcome Measures |journal=Expert Review of Pharmacoeconomics & Outcomes Research |year=2011 |volume=11 |issue=4 |pages=447–453 |url=http://www.erairways.com/Resources/Asthma%20Outcome%20Measures%20(printer-friendly).pdf |accessdate=14 October 2013 |doi=10.1586/erp.11.48 |pmid=21831026 |deadurl=yes |archiveurl=https://web.archive.org/web/20131017035239/http://www.erairways.com/Resources/Asthma%20Outcome%20Measures%20%28printer-friendly%29.pdf |archivedate=17 October 2013 |df= }}
3. ^{{cite journal|last=Crawford|first=S.R.|author2=McKenna, S.|author3= Twiss, J.|author4= Tammaru, M.|author5= Oprandi, N.C.|title=PRS53 Further Developments of the Asthma Life Impact Scale (ALIS)|journal=Value in Health|date=November 2011|volume=14|issue=7|page=A497|doi=10.1016/j.jval.2011.08.1440|url=http://www.valueinhealthjournal.com/article/S1098-3015(11)03002-6/|accessdate=14 October 2013}}
4. ^¹{{cite journal|last=Twiss|first=J.|author2=McKenna, S.P.|author3= Crawford, S.R.|author4= Tammaru, M.|author5= Oprandi, N.C.|title=Adapting the Asthma Life Impact Scale (ALIS) for use in Southern European (Italian) and Eastern European (Russian) cultures|year=2011|volume=14|issue=6|pages=729–738|doi=10.3111/13696998.2011.615356|journal=Journal of Medical Economics|pmid=21899487}}
5. ^{{cite news|last=Piper |first=Lucy |title=Asthma Life Impact Scale is ‘reliable and valid’ |url=http://www.medwirenews.com/48/87550/Respiratory/Asthma_Life_Impact_Scale_is_%E2%80%98reliable_and_valid%E2%80%99.html |archive-url=https://archive.is/20131015073839/http://www.medwirenews.com/48/87550/Respiratory/Asthma_Life_Impact_Scale_is_%E2%80%98reliable_and_valid%E2%80%99.html |dead-url=yes |archive-date=2013-10-15 |accessdate=14 October 2013 |newspaper=Medwire News |date=2010-05-11 }}
6. ^{{cite web|last=Crawford|first=SR|title=Further Developments of the Asthma Life Impact Scale (ALIS)|url=http://www.galen-research.com/content/publications/Galen-ALIS-poster.pdf|work=Galen-Research.com|publisher=Galen Research|accessdate=14 October 2013}}